There are substantial reductions in income over a lifetime for patients with sickle cell disease owing to early mortality, according to a new study that seeks to provide a better understanding of the condition from both the patient point of view as well as a societal point of view.
Despite a reduction in the mortality rate of infants and children with sickle cell disease due to various interventions that allow most patients to survive to adulthood, adults have had a more difficult time due to limited access to care and the lack of treatment options; this leaves much to be desired in terms of major improvements in death rates and quality of life.
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