Introducing the SCDAA and oneSCDvoice Partnership

Introducing the SCDAA and oneSCDvoice Partnership Happy New Year! We hope that you are ushering in a happy and healthy 2020. We are anticipating exciting new breakthroughs this year, from the news of the first patient cured of sickle cell disease through gene therapy to new legislation helping to provide treatment access to patients. As we kick off the new year, we wanted to let our community members know of an important new partnership to the oneSCDvoice platform. First, we give a heartfelt Thank You to the team at Pfizer for their commitment to the sickle cell community and for their tremendous support in making the oneSCDvoice platform the success it is. As we move into 2020, Pfizer made possible an educational grant to enable the platform to have a tighter alignment within the sickle cell disease community by transitioning the management of the platform to the preeminent patient advocacy organization—the Sickle Cell Disease Association of America (SCDAA). All of us on the oneSCDvoice team are looking forward to this close partnership which will bring tremendous value to the sickle cell community. As part of our combined new mission we hope to help drive initiatives such as the Get Connected Patient Registry, help support and drive greater awareness of legislation and advocacy efforts. As always, we will continue to facilitate access trustworthy news, research, and information on sickle cell disease as well as be a trusted space for support and conversation. Happy 2020 and stay tuned for exciting new things to come! The oneSCDvoice team.