Sickle cell disease (SCD) is a group of blood disorders that affect hemoglobin, the molecule in red blood cells that carries oxygen to cells throughout the body. The CDC estimates that 90,000 to 100,000 Americans have SCD, making it a major public health concern that brings with it considerable financial consequences due to the higher number of hospitalizations and increased medical expenditures that sickle cell patients experience over a lifetime compared to the general public. Our best-selling book series today is the Hope & Destiny series, which includes a book written just for adolescents and families impacted by sickle cell disease. Hope and Destiny Jr. is now available in this new 48-page abridged workbook edition for young SCD patients to learn more about their disease, identify their pain, track symptoms and side-effects of treatments and medications, and write about the unique challenges and changes they may be experiencing so they can discuss with their doctor. Related content

Sickle What? is an educational book written in simple language with helpful illustrations to explain complex medical concepts and terminology. Sickle What? arms patients and parents of newly diagnosed children with the knowledge they need to understand and manage sickle cell disease (SCD). Information about what SCD is and how a person gets it is broken down into easy-to-understand terms to help parents better understand and be able to explain SCD to a child – empowering the child to understand what is actually happening inside their body. Sickle What? shows readers how to read and understand a lab report, what action steps to take when pain occurs and the importance of asking questions and communicating openly with doctors. Related content

My Friend Jen is the series of children’s books written by Jenica Leah with the aim to promote sickle cell awareness and to give young children with sickle cell the peace of mind she didn’t have. It is a great tool for creating a better understanding of the blood disorder. Related content

A Sick Life chronicles Tionne's journey from a sickly young girl from Des Moines who was told she wouldn't live to see 30 through her teen years in Atlanta, how she broke into the music scene, and became the superstar musician and sickle-cell disease advocate she is today. Through Tionne's tough, funny, tell-it-like-it-is voice, she shares how she found the inner strength, grit, and determination to live her dream, despite her often unpredictable and debilitating health issues. She dives deep into never-before-told TLC stories, including accounts of her friendship with Lisa "Left-Eye" Lopes and her tragic death. Tionne's unvarnished discussion of her remarkable life, disease, unending strength, and ability to power through the odds offers a story like no other. Related content

After raising my son who has sickle cell disease SS I was sure I was prepared for all of his challenges until at 18 he had a stroke. It forced me to be as strong as I can for him and my other family members. One thing that comforted me was awareness and knowledge and having the tools to stand up and fight. Lee is a boy who has sickle cell and is going to school and he is faced with adversity so he decides to open the eyes of those who want to see the world he lives in by having sickle cell. Lee gives his voice to those who are silenced by shame and ignorance. Related content

This powerful book gives you a behind the scenes look at what it's like to live with the chronic illness, Sickle Cell Anemia. Diagnosed at the tender age of two James faced many daily obstacles and challenges because of his condition but stayed determined not to let it define him. Out of the fear of being judged and looked upon negatively by others, James worked diligently to keep his health a secret and chose never to discuss it openly with anyone. Now with his first published book Breaking Silence: Living With Sickle Cell Anemia, he's done the unthinkable by opening up and revealing all about his illness. Related content

When Gail Campbell Woolley was seven, a pediatrician told her mother that Gail suffered from sickle cell anemia, a rare blood disease, and that she would be dead by age 35. While others may have responded to this horrifying news by descending into a fog of self-pity, Gail went in the opposite direction. She decided to live an eventful, exciting life that ultimately included―despite a troubled home life and the systemic racism and sexism of the late 20th century―academic success, an impressive career, a long and loving marriage, and the ability to leave her unmistakable stamp on every person she met. By the time she finally succumbed to her disease at age 58 in 2015, she had ground that doctor's words into dust. Soar, written in the last two years of her life, is Woolley's powerfully inspiring story, and its publication checks the last item off her extraordinary bucket list, which also included traveling to every continent except Antarctica. Related content

Just Like Me!!! is a picture book designed for young children with sickle cell disease. Filled with colorful pictures and simple concepts, this resource is an easy reference for children to use when they have questions about their disease. Parents, use this story to help your children understand the sickle cell disease process. This book can also be used by sickle cell providers and staff members as a resource for young sickle cell disease patients. Review the glossary of terms often used in the care of children with sickle cell disease. This book does not replace the expertise of the healthcare provider who specialize in sickle cell disease. if you have specific questions, please consult your healthcare provider. Related content

This book offers the opportunity for people who have Sickle Cell disease to see that they are not alone. An individual reading this book will be able to identify with Mrs. Friend and see that they have common experiences even if they live miles apart. The other thing this book offers is hope. It shows that those with sickle cell disease can overcome the illness and live successful and meaningful lives. Related content

 Most of us aren’t looking for recipes that add calories. But for families with sickle cell disease, it’s a different story. Because kids and teens with sickle cell disease break down red blood cells faster than other children do, their bodies use more energy and need more calories to maintain health, avoid complications and keep pace with their peers. High calorie foods and extra snacks can be very helpful. Recognizing this, and not seeing another resource that quite fit the bill, the sickle cell team at Nemours/Alfred I. duPont Hospital for Children, led by dietitian Michell Fullmer, developed a unique cookbook offering recipes for appealing calorie-dense meals and snacks. For people with sickle cell disease, a diet that provides plenty of fuel in the form of calories, protein, vitamins and minerals helps to replace red blood cells. Related content