A missed opportunity to address a national shame: the case of sickle cell disease in the United States

In November 2018, the Centers for Medicare & Medicaid Services (CMS) announced there would be no changes to the core set of 25 pediatric quality measures on which states report performance for the Medicaid program.1 In doing so, CMS ignored the almost unanimous (19-1) recommendation of the Pediatric Measure Application Partnership (P-MAP), an expert committee empaneled by the agency, and also importantly missed a historic opportunity to definitively address a national shame, the poor state of care provided to children with sickle cell disease (SCD). Abstract source
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Sickle Cell and the Work Place

Sickle cell patients find it very tough to get jobs in general as I have been told. They say this is prevalent in private organisations especially because the patients must take time off to go to the hospital regularly or take time off work when sick quite often. As a nation who has the highest number of people suffering from sickle cell, I believe employers could do well to employ people who can work well but perhaps have a health condition. This is so important as I consider that having those who may have one sickness or the other will help us to know more about various illnesses around us, like sickle cell. Related story
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