Blood Myth is a fast-paced platformer mobile game, dedicated to raising awareness for sickle cell disease and re-educating teens suffering from this genetic illness about self-care measures to prevent pain crisis. The game serves an educational purpose and is above all meant to convey a message of hope. All in-game writing was produced by or in collaboration with people with lived experience of sickle cell disease. The sickle cell community played a crucial role in identifying the game’s core metaphors, providing feedback to its messages and themes as well as the character design. Deep Games Laboratory collaborated strongly with Dr. Lewis Hsu, a pediatric hematologist and leading figure in the field of sickle cell research. Dr. Hsu has generously donated his time and expertise to educate the design team on the illness, review the game and provide feedback regarding medical accuracy along every step of the way.   Abstract source

It has been quite a year for Ayòbámi Adébáyò. She is in London for International Women’s Day, as she was last year, when it was announced that her first novel had been longlisted for the Baileys prize. Stay With Me went on to make the shortlist and is now up for the Wellcome prize, the winner of which will be announced later this month. The novel was glowingly reviewed, not least by the New York Times’s high priestess Michiko Kakutani (“stunning”, “powerfully magnetic and heartbreaking”); Sarah Jessica Parker chose it for the American Library’s book club; and the author, who has just turned 30, has been interviewed in both the Paris Review and Vogue.When we meet, she has come from the BBC, where she had been discussing the #MeToo movement in Nigeria. “It’s complex and very different across regions, across class, maybe even across religions,” Adébáyò says, describing what it means to be a young woman in her home country. Related story

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Dr. Steinberg is currently working as professor of medicine at Boston University School of Medicine. He is also associated with Center of Excellence in Sickle Cell Disease at Boston Medical Center. He holds board certifications both in internal medicine and hematology. His expertise includes clinical aspects of hemoglobinopathies and genetics of hemoglobin disorders. Dr. Steinberg’s clinical and research interests include sickle cell disease, inherited disorders of erythrocytes, fetal hemoglobin regulation and genotype-phenotype associations.   Representative Publications: A Mild Phenotype of Severe ß+ Thalassemia in a 16-Month-Old Boy Fetal hemoglobin in sickle cell anemia: The Arab-Indian haplotype and new therapeutic agents A phased SNP-based classification of sickle cell anemia HBB haplotypes Genetic determinants of HbF in Saudi Arabian and African Benin haplotype sickle cell anemia Genome-wide association study to identify variants associated with acute severe vaso-occlusive pain in sickle cell anemia Genetic modulation of fetal hemoglobin in hydroxyurea-treated sickle cell anemia Online profile

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Calvanay Nunley is a sickle cell warrior. She encountered a major sickle cell crisis for the first time and was diagnosed with sickle cell disease when she was in fifth grade. She is a very courageous girl with strong will power and wants to be a nurse by profession. She also runs a mentorship/support group for adolescents (age 15-18) with sickle cell disease known as “A walk in my shoes” where all faces different challenges living with sickle cell disease but strive for success, encourage healthy living and education , promote self advocacy raise awareness for sickle cell community. Online profile