Over the past few months, more than 1,000 people in the U.S.A. and Canada were infected with a bacteria called Salmonella. The Centers for Disease Control and Prevention investigation can be read here.

“… red onions from Thomson International Inc., were the likely source of the outbreak. Other onion types (such as white, yellow, or sweet yellow) were also likely to be contaminated because the onions were grown and harvested together… On August 1, 2020, Thomson International Inc., recalled all red, yellow, white, and sweet yellow onions because they may be contaminated with Salmonella. Other companies also recalled onions or foods made with recalled onions. Consumers, restaurants, and retailers should not eat, serve, or sell recalled onions and products.”

Salmonella can cause special problems in individuals with sickle cell disease and thalassemia: bone infection (osteomyelitis) or joint infection (septic arthritis).

Our goal is to improve and expand patient and provider knowledge and to improve the treatment for sickle cell disease.  We are excited to host a Pre-symposium Student Research Fair at 9:30am featuring poster presentations on Comparative Effectiveness Research. We will also host the Lunch and Learn, the Youth Research Expedition.

We're planning an exciting program suitable for individuals effected by sickle cell disease, health care professionals who provide care for patients with the condition from infancy to adulthood (including private practice physicians, hospitalists, ED staff, nurses, social workers), and the community at large.

Registration is FREE. Be sure to Get Connected with The Sickle Cell Association of New Jersey (SCANJ). The Dr. Charles F. Whitten Awards for outstanding service will be announced at the Symposium.

Date & Time:
Saturday, November 19th, 2022
9:30 AM to 1:30 PM EST

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Former U.S. President Jimmy Carter and former First Lady Rosalynn congratulated the Sickle Cell Foundation of Georgia, Inc. (SCFG) on its 50th Anniversary of bringing testing, counseling and educational awareness of Sickle Cell Anemia to residents, physicians, nurses and care providers across the state.

“Rosalynn joins me in congratulating you and the Sickle Cell Foundation of Georgia, Inc. (SCFG) on 50 years of outstanding service to the citizens of Georgia. It does not seem that long ago since your father, Dr. Nelson McGhee, Dr. Delutha H. King, Jr., and Xernona Clayton came to me when I was Governor of Georgia, to ask for a match to funds they had raised in response to the infant mortality rate and the growing number of children who died before their 18th birthday. At that time, the average life expectancy for children living with sickle cell was age 16 or younger,” President Carter said in a letter to former SCFG President and CEO Debra McGhee-McCrary.

4th Annual Virtual Sickle Cell Caregiver Summit
Guiding caregivers toward a life of patience, awareness, and community

November 14-17, 2024: Save the date!

Virtual

The Sickle Cell Community Consortium (SC3) is delighted to present our 4th Annual Sickle Cell Caregiver Summit on November 14-17! Mark your calendars and plan to attend this incredible gathering of like-minded individuals. Let's learn, support, and advocate for the sickle cell community. Together, we can make a difference!

September 24, 2021 — News about COVID-19 continues to move quickly as we weather the pandemic. The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee provides the following updates on vaccination recommendations:

1. Individuals with SCD are now eligible for the third dose of the COVID-19 vaccine. The CDC recommends that people who are immunocompromised or have medical conditions with poor antibody production receive vaccine boosters. One of the eligible conditions is asplenia (no spleen function). Because of the relationship between asplenia and SCD, sickle cell patients are eligible to receive a third dose of the vaccine if they have already received the first two doses.

2. If you have not had the first dose of the vaccine, please do so as soon as possible. Nearly everybody is eligible to receive their first shot. Only children under age 12 or individuals with known allergies to the vaccine ingredients are ineligible. Thousands of individuals with SCD have now had the COVID-19 vaccine. Like the public, many had some side effects that went away after three days. Only a tiny number of individuals experienced sickle cell pain after their shot. A COVID-19 infection poses a great risk for people with SCD. The vaccine is a safe way to reduce that risk. To find a vaccine location near you, visit www.vaccines.gov.

The Sickle Cell Disease Association of America has launched a COVID-19 Emergency Fund Campaign to rapidly raise funds and deploy critical resources to nonprofits that serve sickle cell patients and their families through sicklecelldisease.org with the goal of raising $100,000 in the next 10 days.

We’re facing an unparalleled challenge and it requires all of us working together to support those most impacted in our communities” said Beverley Francis-Gibson, President of the Sickle Cell Disease Association of America.

Come celebrate the 8th year of the University City Turkey Trot brought to you by Sickle Cell Partners of the Carolinas on Thanksgiving Day!

Join fellow runners and walkers Thanksgiving Day for the 8th annual University City Turkey Trot 5K at 3024 Prosperity Church Road in Charlotte for all of University City to enjoy! After the race, cool down and enjoy a post-race mini-feast featuring food, drinks and music!

The University City Turkey Trot 5K will also feature a fun run for kids of all ages and costumes are encouraged for all those young at heart! Prizes will be awarded for the top three costumes. Participation in this event supports Sickle Cell Partners of the Carolinas.

Date & Time:

Thanksgiving Day, Thursday, November 24, 2022 at 8:00 AM

Location:

3024 Prosperity Church Road Charlotte, North Carolina, USA

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Join Sickle Cell Disease Association of America (SCDAA) for an informative town hall discussion surrounding gene therapy. Hear the questions, answers, misinformation and unknowns about SCD gene therapy from our trusted expert advisors, patients and advocates.

After registering, you will receive a confirmation email containing information about joining the meeting.

Register here!

Date & Time:
Monday, June 28, 2021
6:30 PM – 8:30 PM EST

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This Trans–National Institutes of Health (NIH) workshop will focus on sickle cell disease pain. Researchers will explore critical gaps and research challenges as well as brainstorm potential solutions for this grossly understudied pain condition in a highly underserved population. This fits into the NIH mission of seeking fundamental knowledge to enhance health. The meeting planning is being led by the National Center for Complementary and Integrative Health and the National Heart, Lung, and Blood Institute.

Date & Time:
Wednesday, July 21, 2021; 11:30 AM – 5:30 PM
Thursday, July 22, 2021; 11:30 AM – 5:30 PM

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Join us as we talk about important issues in sickle cell disease at our virtual 8th Annual World Sickle Cell Day Event!

June 19 is World Sickle Cell Day, and we invite you to join us on June 18, 2021 as we delve into topics that affect people with sickle cell disease and their families.

We'll discuss issues such as:
• Mental Health and SCD
• Living Well with SCD
• College life with SCD
• Developments in Gene Therapy

Experts in these topics, as well as SCD Warriors, will share their perspectives and experiences, and then you will be invited to join the conversation!

Date and Time:
Fri, Jun 18, 2021, 11:30 PM – Sat, Jun 19, 2021, 2:00 AM IST

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