Sickle Cell Disease Association of North Texas

SCDA Tarrant is committed to providing meaningful support for persons living with sickle-cell conditions and to work effectively with its clients, partners, caregivers and other social service organizations. SCDA's community-based (non-clinical) programs and services include: - Education (advocacy, awareness, prevention and promotion) - Screening and Testing (sickle cell and associated hemoglobin abnormalities) - Client and Family Services (client intervention, case management for genetic counseling, disease education and more). Social media
Original published date
Original source title
oneSCDvoice
Original updated date

Sickle Cell Disease Association: Philadelphia/Delaware Valley Chapter

SCDAA/PDVC's mission is to serve as a vehicle and resource center for the psycho-social, social service and advocacy needs of children, adolescents, adults and families affected by Sickle Cell Disease and Sickle Cell Trait. SCDAA/PDVC seeks to develop, manage and allocate resources in partnership with hospitals, charitable organizations, community based organizations and social service agencies. Social media
Original published date
Original source title
oneSCDvoice
Original updated date

Thalassaemia & Sickle Cell Society of Australia

The Thalassaemia and Sickle Cell Society of Australia is a not-for-profit community organisation that serves as a support and advocacy network for people affected by chronic genetic blood conditions like thalassaemia and sickle cell anaemia. TASCS Australia is dedicated to: Serving as a support network for Australians affected by chronic genetic blood disorders known as "haemoglobinopathies", like thalassaemia and sickle cell anaemia, Seeking to educate and raise public awareness of haemoglobinpathies within Australia, and the need to encourage the public to be tested for these conditions, Encouraging healthy members of the public to donate blood to the Australian Red Cross Blood Service, as fellow Australians who are affected by genetic haemoglobinopathies, require regular blood transfusions in order to live and manage their condition. Social media
Original published date
Original source title
oneSCDvoice
Original updated date

Foundation For Sickle Cell Disease Research

The Foundation for Sickle Cell Disease Research (FSCDR) is committed to supporting innovative research in sickle cell disease to help maximize quality of life and improve survival for the generations of people affected with this disease. FSCDR is a comprehensive, non-profit organization that provides a platform for researchers, healthcare providers, individuals and their families living with sickle cell disease and supporters to work collaboratively in identifying barriers that are limiting creation, adoption and adherence to evidence-based screening recommendations, new therapeutics and best practices that help in the management of sickle cell disease. FSCDR also provides networking that facilitate collaborative learning through its membership-based Sickle Cell Research Society of America (SCRSA) and its general Corporate Engagement Forum, which also invites patient participation. Social media
Original published date
Original source title
oneSCDvoice
Original updated date

Sickle Cell Society Ireland

Sickle Cell Society Ireland (SCSI) is the Official Umbrella Organisation for all sickle cell support groups. SCSI represents Ireland at international and global fronts, currently holding the PESCA presidency at the EU front. We specialize in Parent Support, Advocacy, Partnerships & Creating Awareness of Sickle Cell through Educational Workshops, Conferences and Seminars, around Irish Counties. Social media
Original published date
Original source title
oneSCDvoice
Original updated date

Bold Lips for Sickle Cell

It was started on 19 August 2014 by Shamonica CEO & JewEL CFO, boosted by members of the Sickle Cell Community, including celebrity artist, Tionne Watkins, aka T-Boz. The mission is to help bring awareness to Sickle Cell Disease and to find a cure. Social media
Original published date
Original source title
oneSCDvoice
Original updated date

The Sickle Cell Disease Association of Canada - SCDACcdac/AAFC

We are a non-profit Sickle Cell Disease Association of Canada and a National Voice for Sickle Cell Disease. We are dedicated to improving the lives of those living with the disease. Social media
Original published date
Original source title
oneSCDvoice
Original updated date