Supporters of Families with Sickle Cell Disease (Supporters’), Inc., is a comprehensive community-based organization which services individuals and families living with sickle cell and thalassemia disease and trait in Oklahoma. The mission of Supporters is to improve the quality of life for individuals living with sickle cell and thalassemia, children, adults, and their families within the State of Oklahoma, through systematic changes in patient care, policy, education, advocacy, family support, economic, self sufficiency, and awareness. Supporter’s is the center of contact and community service provision for the estimated 40,000 Oklahomans with sickle cell trait and approximate 1,500 Oklahoma families living with sickle cell and thalassemia disease in Oklahoma. Supporters' believe self-care management, education, research and development, and economic self-sufficiency is an approach which increases empowerment, advocacy, family self-efficacy and support. Official website

DORYS is an association to fight against sickle cell disease. DORYS was recorded by the Tribunal d’Instance de Strasbourg in the Register of Associations 23/02/04, volume 82 folio 45. Objectives of the association of DORYS: -training, awareness, -reinforcement of screening in populations at risk and take better care of patients, -assistance in setting up blood safety, -help to improve the quality of water: hydration is very important in SCD Official website

The Network of Rare Blood Disorder Organizations (NRBDO) is a coalition of national patient groups, formed to share the best practices in health care delivery for people with rare blood disorders such as hereditary angioedema; aplastic anemia, Fanconi anemia, paroxysmal nocturnal hemoglobinuria (PNH), and myelodysplasia; primary immune deficiency; porphyria, sickle cell disease, thalassemia, thrombotic thrombocytopenic purpura (TTP), hemophilia, and von Willebrand disease. They work and advocate together in a coordinated fashion, toward high quality, effective, accessible, interdisciplinary care for all Canadians affected by rare blood disorders. ​Their mandate is to improve the healthcare delivery for people affected by rare blood disorders by: -working together to ensure the best comprehensive care -ensuring a safe and secure blood system -supporting the members by sharing best practices in governance -developing skills in health care advocacy -avoiding overlap and inefficiencies Official website

Sickle Cell & Young Stroke Survivors (SCYSS) is a registered charity, that holistically supports children, young people and their families affected by sickle cell anaemia and childhood stroke. It started as a support group in June 2005 but as the need grew, in September 2007, it became a registered charity. Many people do not know that Sickle Cell can cause a stroke in children as young as 2 and up to the age of 16 years old. Most times it leaves children with long term disabilities in addition to their Sickle cell. It affects the whole families as extra hospital appointments and therapies are needed. Many parents/carers find themselves having to make extra sacrifices to ensure their child has a better quality of life. Official website

Sickle Cell Care Manchester is a charitable organisation run by people whose lives have been affected by Sickle Cell Disease for people living with Sickle Cell Disease and their families. Their focus is to enable everyone affected by Sickle Cell Disease to live life to their full potential and secure the care and support they need, until we ultimately find a cure. Sickle Cell Care Manchester will strive to support people diagnosed with Sickle Cell Disease (SCD), their families and carers, in order to empower affected individuals and to enhance their quality of life. Sickle Cell Care Manchester also works to improve awareness of SCD, not only in the communities most at risk of the condition, but also more widely, to improve knowledge and understanding of SCD, and to foster acceptance of those living with the condition. Official website

The Sickle Cell Foundation of Tennessee (SCFT) is a 501 (C)(3) non-profit organization founded in 2008, by the late Dr. Trevor K. Thompson and Cherry N. Whitehead-Thompson. As an educator (Administrator with Memphis City Schools) and sickle cell disease consumer, Dr. Thompson championed the call for advocacy, educational support and social services for citizens impacted by sickle cell disease in Memphis, across the state of Tennessee, and in the regions of north Mississippi and eastern Arkansas. His efforts have enabled SCFT to provide educational awareness, through direct contact, via television, radio, print, and social media to more than 1,000,000 citizens across the Mid-South area. Mission: To provide educational awareness, comprehensive social services, and collective supportive impact to all persons affected by Sickle Cell Disease within our service areas. Vision: To improve the quality, self-sufficiency, and sustainment of life of all sickle cell consumers to the highest credible level possible. Official website

The Sickle Cell Cares Foundation was established in January of 2013 by Kellyn George as an initiative to address the lack of awareness about the Sickle Cell Disease in Dominica. The Sickle Cell Cares Foundation provides information to individuals and families going through the struggles of dealing with this disease. With continuing research on Sickle Cell Disease being conducted, the organization will provide up to date information on the care and treatment of Sickle Cell Disease. The Sickle Cell Cares Foundation plans to develop its support initiative by introducing financial support to patients, counseling and mental health support to patients and their families, and bridging the gap between patients and their healthcare providers by establishing a patient-doctor network. Official website

The Bahamas Sickle Cell Association is dedicated to advocating and encouraging continued research for a cure for Sickle Cell Disease while working to enhance the quality of healthcare, life and services for individuals and families affected by this disease. Vision: To provide education, advocacy and support toward improving the quality of life for all persons at risk with sickle cell disease. Official website

Sickle Cell Partners of the Carolinas was formed in January of 2009. At that time, patients, families and members of the medical community came together informally to meet and discuss ideas involving care and support in the Sickle Cell community. From those conversations, Sickle Cell Partners of the Carolinas came into being and is an organization that consists of patients of all ages; families; caregivers; healthcare providers; social workers and an at large community that cares deeply about those affected by Sickle Cell Disease. The original founders of the organization included patients, families and members of the medical community. The need for a support group was expressed to engage patients and families affected by Sickle Cell Anemia, Sickle Cell Trait, and Thalassemia. Official website

The Comprehensive Pediatric Sickle Cell Program at the hospital is a nationally recognized program which has been the recipient of competitive grants from the Health Resources and Service Administration since 1995. The Program is enhanced by funding from New York State Department of Health. Board Certified Hematologists and other personnel provide coordinated care in all settings. Mission: To provide coordinated, comprehensive medical care, education and psychosocial support to enhance quality of life of patients with sickle cell disease and their families. Services: -Evaluation and genetic counseling for all patients -24 hour urgent care -State of the art patient care -Pain management -Trans-Cranial Doppler (TCD) screening for stroke -Phenotype matched transfusions -Coordination of multi-disciplinary care -Support groups for parents and young adults -Patient, professional and community education -Quarterly Newsletter - The Sickle Star Official website