A Sickle Cell Caregiver’s Perspective on School and ER Visits

My daughter started school last year prior she had been homeschooled. She was in the 7th grade. She attends a private school, but I had to meet with all of her teachers and her principal. I gave the school a copy of her health history form that was required, and I have them a copy of Sickle Cell and School: A Guide to School Policy and Best Practices Covid Edition. The booklet is from the Sickle Cell Community Consortium. In the back of the book is a Health Plan Template that I completed on my daughter’s behalf. The plan includes a picture of her, her grade, gender, condition, date of plan, review date, parent/guardian contacts, emergency contact, campus key person, primary care physician, and the steps to take regarding prevention. It also includes medication, pain management, and stakeholders regarding the individual health plan (school nurse, teacher/administrator, sickle cell nurse/social worker, and school staff that have a copy of the plan).   Related story
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Understanding Your Health Insurance Policy Documents Tip Sheet

When you purchase a health insurance policy, your insurance company agrees to financially protect you if you get sick or hurt by helping to pay for the healthcare services you need. They also agree to provide preventative services and screening tests, which must be provided at no cost to you. As a complementary document to PAF's Health Insurance Education Series, this tip sheet explains how to read important insurance documents such as your member/subscriber ID card, the summary of benefits and coverage document, the summary plan description, and explains what you can expect to find in your plan's policy language.   Abstract source
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10 Tips to Get the Most Out of Your Health Insurance Tip Sheet

As we all know, healthcare can be expensive. So, we have put together some tips to help you use your benefits wisely and get the most value for your money where healthcare is concerned. As a complementary document to PAF's Health Insurance Education Series, this tip sheet offers 10 tips to help you get the most out of your health insurance. •  Choose the right health insurance policy for you and your family •  Understand the basic structure of your policy •  Stick with in-network providers at every opportunity •  Shop around for the best price for a procedure, test or other scheduled care •  Be sure you understand your right to appeal if care is denied by your health insurance •  See if your medications come in a generic form •  Compare your explanations of benefits (EOB) to your medical bill before you pay it •  Utilize any programs, discounts and benefits your health insurance policy offers •  Make sure all your personal information is correct with your providers and the insurance company •  Use hospital emergency rooms for medical emergencies only   Abstract source
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How Health Insurance Works Tip Sheet

Healthcare in the United States can be very expensive. A single doctor’s office visit may cost several hundred dollars and an average three-day hospital stay can run tens of thousands of dollars (or even more) depending on the type of care provided.  This is where health insurance comes in. There are many types of insurance in the US, so there are lots of different rules about how they all work. All qualified health plans include emergency services, hospitalization, laboratory tests, and prescription drugs. As a complementary document to PAF's Health Insurance Education Series, this tip sheet breaks down the various insurance plan types as well as common terms you need to understand.   Abstract source
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Co-Pay Relief Brochure

PAF's Co-Pay Relief Program helps eligible insured individuals by offering financial assistance for co-payment, co-insurance, and deductible expenses related to pharmaceutical treatments and/or medications prescriptions relative to their diagnosis. This brochure provides eligibility criteria, application process and contact information for the program.  
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Rule The School

Everyone wants their child to be safe and healthy at school. When a child with sickle cell disease starts school, however, parents have greater cause for concern. Here are some tips to help work through these concerns. Get off to a good start. When starting a new school or a new grade, talk to the school staff and nurse about your child’s sickle cell disease. Prepare a school kit. Set up a folder or binder that has up-to-date information about your child. Give the binder to the school. In an emergency, they will have important information they may need about your child. The kit should include:              ·         A recent picture              ·         Family contact names and phone numbers              ·         Doctor name and phone number              ·         Prescription information              ·         Insurance information              ·         Brochures on sickle cell disease   Abstract source
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