Are you tired of monitoring the status of disease funds at charitable patient assistance foundations every week? Are you looking for a simple way to tell which disease funds are open without having to individually check each website? FundFinder is a new web-based app designed to help you quickly learn when financial assistance is available for a life-threatening, chronic or rare disease at PAN and other charitable foundations. With FundFinder, you can sign up for email or text message notifications to learn when financial assistance becomes available for a specific diagnosis at any foundation—eliminating the need to manually monitor their websites. Designed for patients and their caregivers, healthcare providers, pharmacists and patient advocates, FundFinder streamlines the search for financial assistance.

What is a Priapism?  Priapism is an uncomfortable, unwanted erection of the penis which doesn’t go away and is not associated with sexual desire or stimulation. It can frequently be painful and distressing.  The majority of males with sickle cell anaemia (HbSS) are likely to experience a priapism in their life time. However, Priapism is less common in males with sickle cell disease (HbSC+) and sickle beta thalassaemia (HbSB+). Full text

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Nutritionist Alana Kessler discusses how diet can help support and improve the quality of life of patients with sickle cell anemia. Full text

Tevin and Akilah Coleman are determined to make a difference. The NFL star and his wife both knew growing up that they carried the sickle cell gene but didn't realize how that would impact them as they started their family. Speaking with PEOPLE to discuss the auctioning of his cleats as part of the NFL's My Cause, My Cleats, the veteran running back and his wife shared how their journey into sickle cell advocacy began after their daughter Nazaneen was diagnosed. Tevin and Akilah welcomed their twins, Nazaneen and Nezerah, in 2017, and found out about Nazaneen's unique health needs when she was just an infant. "I knew something was up," Akilah tells PEOPLE. "My son, they knew he didn't have it but pretty instantly, with my daughter, we had to go back and do a couple of different tests because they knew that there was something going on. It was confirmed around four months." Related story

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My name is Tristan from the United States and I am living with Sickle cell anemia. My passion in life is fashion, design, and entertainment. I am a professional model, an actor, and a fashion designer who has couture, and ready to wear fashion brand for Sickle Cell Disease Awareness that I created, called DiVo Stars, and Haus Of DiVo. I love to sketch and create new designs for my brand. When I see someone in my clothes and see how it makes them feel good about themselves I get so much joy from that.   Related story

https://www.youtube.com/watch?v=JXVQyvy1pc0