SCDAA National SCD Policy Forum

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The Sickle Cell Disease Association of America, Inc. is proud to present the first-ever National SCD Policy Forum on March 21 & 22, 2023. This tri-collaborative event is hosted by SCDAA, Sick Cells (@sickcells), and the Sickle Cell Community Consortium (@sccconsortium). Our three organizations are working hard to host the most comprehensive advocacy event for sickle cell disease (SCD) to date.

The goal of this event is to:
• Bring together SCD advocates from across the country.
• Build awareness of federal opportunities for SCD.
• Educate legislators on funding and policy interventions that support the needs of SCD Warriors and the SCD community as a whole.

Day 1 will be full of trainings on the 2023 federal priorities for SCD.
Day 2 is our virtual Hill Day, a time for advocates to connect directly with their federal legislators.

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sicklecelldisease.org
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Chiltern 50 Challenge

End of season 50 km looped route in some of the Chilterns finest countryside, with historic trails, rolling hills, nature reserves, and fantastic views. At our basecamp in Henley, there’s a Saturday night celebration BBQ, bar & entertainment, with extensive on-site camping & parking options. A route with real variety and some wonderful scenery – and easily accessible from London. You’ll get full support & hospitality, and with 25 km options and a 10K also available, there’s a Chiltern Challenge for everyone!

 

When:

Saturday, September 23, 2023

 

Where:

Henley Showground 

Hambleden, RG9 3GH, UK

 

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ultrachallenge.com
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Sickle Cell 5K Walk

Join the Black and African Heritage Network at the 2022 Annual Sickle Cell 5K Walk organized by the Metropolitan Seattle Sickle Cell Task Force. This family event is intended to raise awareness, provide education and community outreach, and provide a sense of community regarding sickle cell disease and sickle cell trait. All proceeds of the walk will go directly to support Metropolitan Seattle Sickle Cell Task Force’s sickle cell programs, which include internships, scholarships, retreats, education, transition, and support.

 

Register here

 

When:

Saturday, September 10, 2022 

10:30 a.m. - 1:00 p.m.

 

Where:

Seward Park, 5900 Lake 

Washington Blvd. S

Seattle, Washington, USA

 

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seattlechildrens.org
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10th Annual Sickle Cell Walk for Awareness & Community Marketplace

The Sickle Cell Anemia Foundation of Oregon will host the 10th installment of "Walk a Mile for Sickle Cell", a run, bike, and walk-a-thon on September 10th during National Sickle Cell Awareness Month. This is our largest fundraiser of the year and we need your help in raising money to support Oregon families impacted by Sickle Cell and to bring much-needed awareness about Sickle Cell. We will also feature a Community Marketplace with local artists and vendors with unique offerings and incredible art with music provided by DJ Get'EM

Join us and "Walk a Mile for Sickle Cell". Can't make it to the walk in person that is okay, donations are being accepted, any amount is appreciated and we are also accepting sponsors at each sponsorship level.

 

When:

Saturday, September 10, 2022

9:00 AM – 1:00 PM PDT

 

Where:

Life Change Church

3635 N Williams Ave.

Portland, Oregon, USA

 

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eventbrite.com
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South Coast Challenge

The South Downs National Park is a superb backdrop for 2000 adventurers to take on a real challenge. An Eastbourne start, up Beachy Head, the magnificent Seven Sisters, and along the South Downs Way, with stunning views over the sea, to a Brighton half-way. Devil’s Dyke, and a few ups & downs lie ahead before historic Arundel comes into view after an amazing 100 km journey. You’ll get full support & hospitality all the way – and with half & quarter distance options available – there’s a South Coast Challenge for everyone!

 

When:

September 3 - 4, 2022

 

Where:

Bramley Camping Park

Wannock Rd

Polegate BN26 5PH, UK

 

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ultrachallenge.com
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Thames Path Challenge

England’s greatest river provides a fantastic backdrop for an unforgettable challenge. Over 3000 adventurers will join the Putney Bridge start, and the full 100km route heads upstream to Henley along the famous Towpath. It’s through Richmond, Hampton Court, Runnymede, and Windsor, with some wonderful scenery to a riverside finish line. With 50km & 25km distance options also available – plus the separate 25km ‘Thames Bridges Trek’ & ‘The Moonlight 10 Walk’ through Central London as part of the weekend ‘festival’ – there’s a Thames Challenge for everyone!

 

When:

September 10 - 11, 2022

 

Where:

Bishops Park

W. London, UK

 

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ultrachallenge.com
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Thames Bridges Trek

Join 2000 walkers and trek across the Capital taking in unrivaled views of the skyline, and historic landmarks. Setting out from the Putney Bridge start we head East towards the City, zig-zagging over 16 historic bridges – each with its own fascinating story – and a midpoint rest stop near The Oval Cricket Ground for some snacks & drinks. 25km later, it’s a party-style finish line celebration in Southwark Park past the final crossing – the majestic Tower Bridge.

 

When:

Saturday, September 10, 2022

 

Where:

Bishop's Park

Fulham, London

SW6 3LA, UK

 

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ultrachallenge.com
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Thames Moonlight 10 Walk

The Moonlight 10 Walk kicks off the famous Thames Path Challenge weekend festival of riverside events! Take on either a spirited 10 km or an energetic 10-mile looped route through the heart of London as darkness falls and the Moon rises. Experience London in a different light, passing famous landmarks – including St Paul’s, Westminster Abbey, Tower Bridge, the London Eye, and more. A lively finish line awaits – with a glass of fizz & a special Moon medal – followed by some welcome hot food & drink.

On Friday 9th September 2022, 500 challengers taking part in either the 10 km or 10-mile challenge, on a loop around our magnificent capital at its best – a Friday night. This area is designed to help all Challengers (and their supporters!) plan and prepare for the challenge.

 

When:

Friday, September 9, 2022

 

Where:

New Spring Gardens Walk 

Vauxhall, Vauxhall Walk 

London SE11 5HL, UK

 

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ultrachallenge.com
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The Henley 10k

Back for 2022 alongside the Thames Path Challenge’s main finish venue. It’s a fabulous 10 km loop through Remenham countryside with a start / finish near Henley Bridge on Sunday morning. Take it on as a Walk, a Jog, or as a Run – and get your family and friends involved.

Our Henley riverside base camp is a great location for a ‘Mini Challenge’ and with an optional BBQ, a ‘Toddler 2K’ fun event – there is something for everyone down by the river!

 

When:

Sunday, September 11, 2022

 

Where:

Mill Meadows

Henley-on-Thames RG9 1BF, UK

 

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ultrachallenge.com
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Sickle Cell Awareness Walk

Divas 4 Divas and All Hands Together will sponsor a Sickle Cell Awareness Walk for the Sickle Cell Foundation of River Region, on September 17, 2022, from 8:00 AM until 11:00 AM at Gateway Park located at 3800 Davenport Drive, Montgomery, AL 36105. The purpose of this event is to raise awareness about Sickle Cell Disease. This event is free to the public, and there will be live music, games, and a door prize. Ms. Monica R. VanDiver will be present and would like to extend an invitation to our Sickle Cell clients, their families, and the community.

For more information, please contact Mrs. Aretha Bettis, Founder of Divas 4 Divas, at (334) 430-9753.

 

When:

September 17, 2022

8:00 AM - 11:00 AM

 

Where:

Gateway Park, 

3800 Davenport Drive, 

Montgomery, AL 36105, USA

 

This event has ended.

 

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riverregionsicklecell.com
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