September Is Sickle Cell Awareness Month: Bringing Attention to This Disease and Why Blood Donations Are Vital for Those Battling It

September is Sickle Cell Awareness Month, a time to highlight how this often-invisible and rare disease impacts over 100,000 people— most of whom are of African descent and will require regular blood transfusions to help manage their disease. Despite the discovery of the disease has taken place more than a century ago, there has been limited research and few treatments to date to help those suffering from sickle cell crisis, a troubling legacy of neglect for rare diseases—especially those that primarily affect individuals who are Black.

Kick-off this month with a lifesaving blood donation. The Red Cross urges eligible individuals who are feeling well to please make an appointment today by visiting RedCrossBlood.org, using the Red Cross Blood Donor App, or calling 1-800-RED-CROSS.

The health and safety of everyone attending Red Cross blood drives across the country is a priority, especially as COVID-19 cases are surging again. As such, the Red Cross resumed requiring all blood donors, staff, and others at our blood drives and donation centers to wear face masks regardless of their vaccination status on Aug. 9. Individuals who have received a COVID-19 vaccine are still eligible to donate blood and platelets. Knowing the name of the manufacturer of the vaccine they receive is important in determining blood donation eligibility. 

 

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10th Annual Sickle Cell Disease Conference: Carolina Update

We are excited to announce that the 10th Annual Sickle Cell Disease Conference: Carolina Update, hosted collaboratively by the University of North Carolina Chapel Hill Sickle Cell Disease Program and Duke University School of Nursing, is scheduled for two virtual sessions. The conference is free to attend and designed for health care providers and individuals/families living with sickle cell disease.

This two-day, virtual event will include speakers who are experts in Sickle Cell Disease, as providers or as a lived experience. Together, we will discuss new and innovative therapies for SCD. We are especially pleased to present a provider panel (pain) and a panel of patients living with SCD and their caretakers.

 

Register here

 

When:

September 16-17, 2022

10:00 AM to 12:30 PM

 

 

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nursing.duke.edu
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Sickle Cell Disease Adult and Family Support Group & Educational Series

Join our online patient and family support group on the second Thursday of every month from 6:30 p.m. to 8:30 p.m. You’ll learn more about living with sickle cell disease and hear from others who have been affected.

Join us for life-enriching:

• Information

• Motivation

• Education

• Recreation

• Connections

• Relationships

• Encouragement

 

When: 

September 8, 2022 | 06:30 PM - 08:30 PM

October 13, 2022 | 06:30 PM - 08:30 PM

November 10, 2022 | 06:30 PM - 08:30 PM

December 8, 2022 | 06:30 PM - 08:30 PM

 

Where:

Zoom Meeting

 

This event has ended.

 

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events.lluh.org
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24th Annual SCTPN Walk for Sickle Cell Disease Education

Sickle Cell/Thalassemia Patients Network (SCTPN) began in 1989 at Brooklyn Jewish Hospital (now known as Interfaith Medical Center) located in Brooklyn, NY, as an adult and parent support group for individuals with an inherited blood disorder.

SCTPN celebrates 23 years of walking to raise awareness and funds for Sickle Cell Disease (SCD).

This is the second year that the walk will be held virtually on Zoom, and the theme for this celebration is #EveryStepYouTake #ShinestheLightonSickleCellDisease.

 

When:

Saturday, September 17,  2022

9:00 AM Registration

11:00 AM Starts to 2:00 PM Ends

 

Where:

Central Park West

W. 72nd Street

New York, USA

 

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p2p.onecause.com
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12th Annual Fun Walk - Uriel E. Owens Sickle Cell Disease Association of the Midwest

Uriel E. Owens Sickle Cell Disease Association of the Midwest is organizing the 12th Annual Fun Walk. All registered participants will receive a commemorative t-shirt and swag bag at the walk!

 

When:

September 10, 2022

8:30 AM – 12:00 PM

 

Where:

7250 State Ave

Kansas City, Kansas, USA

 

This event has ended.

 

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sicklecellmidwest.org
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1st Annual Saadia Hunt Memorial Sickle Cell Awareness Walk/Run

Show your support for Sickle cell: Whether it's an early morning stroll before your workday, a lunch break breather, a fun time with the kids, or your desire to beat your current mile time, we would like you to join us all month long! Wear your shirt, then walk, run, jog, or bike...it's up to you, as long as you move! We hope that you'll find a fun and safe way to participate and share your experience(s) on social media on this website for the whole month of September!

 

When:

Saturday, September 10, 2022

10:00 AM - 1:00 PM (Registration to begin at 8:30 AM)

 

Where:

Riverscape Metropark

237 E. Monument Ave.

Dayton, Ohio, USA

 

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runsignup.com
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48th Annual Walk Jog Bike-A-Thon: SCDAI

Grab your family and friends and join us as we Get active and Raise Sickle Cell Awareness One-Mile at a Time! 

The Sickle Cell Disease Association of Illinois (SCDAI) invites you, your family & friends to join us in raising awareness and funding for individuals in Illinois dealing with the daily struggles of Sickle Cell Disease!  Register to receive your 2022 event t-shirt and medal. This year we will be back in person at Marquette Park 67th & Mann Dr. (Kedzie)! You can still choose to participate virtually meaning you get to conveniently choose where you walk, run, jog or bike! We will begin registration and Fundraising now until the end of SEPTEMBER which is Sickle Cell Awareness month.  Please help us by getting the word out and gearing up to either walk, jog, run or ride in support of individuals living with Sickle Cell Disease while honoring individuals who have passed away from the Disease!

 

When:

Saturday, September 24, 2022

 

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A Community Uniting Through Fashion for Sickle Cell Awareness

Meet us on the Runway Saturday, September 24, 2022, while we Paint Indy Red for Sickle Cell Awareness! Indy's Small Business Owner come together for an amazing cause!

A portion of the proceeds will be donated to the Martin Center. The Martin Center has been committed to providing essential programs and services to benefit individuals and families affected by Sickle Cell since 1969.

 

When:

Saturday, September 24, 2022

5:00 PM – 8:00 PM EDT

 

Where:

The Reset Center

4330 North Post Road

Indianapolis, USA

 

This event has ended.

 

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eventbrite.com
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Sickle Cell-Ebration Walk

September is nationally recognized as a sickle cell awareness month. Sickle Cell Foundation of Palm Beach County presents Sickle Cell – Ebration- walk, run, and have fun.

Join us as we walk across the Blue Heron Bridge to raise awareness of sickle cell disease and cell- eberate the courageous warriors who face this disease on a daily basis.

 

When:

September 24, 2022

 

Where:

Riviera Beach Ocean Mall,

2500 N. Ocean Avenue,

Riviera beach, FL 33404, USA

 

Sorry for the inconvenience!

We regret to announce, due to circumstances, we have to cancel the Sickle Cell-Ebration Awareness Walk. We will reschedule as soon as all details have been confirmed and we will keep you updated.

 

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sicklecellpbc.org
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Michelle’s House (SCDAA, CT) - Walk Run Bike

Michelle’s House (Sickle Cell Disease Association of America, CT) presents Walk Run Bike. Participants may walk, run or bike on Saturday, September 24, 2022, at East Rock Park!  The event takes place at College Woods in East Rock Park. 5K participants will run along the Mill River and around the bottom of East Rock before turning around and returning to the finish. The course is a nice shaded route, perfect for September!  We encourage you to wear your t-shirt while you walk, run or bike and share your photos on social media! 

Your participation in this event will help support the critical programs that provide educational awareness which drives Sickle Cell Disease prevention.

 

Register here

 

When:

Saturday, September 24, 2022

 

Where:

New Haven, Connecticut, USA

 

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