Walking for your warrior. Walking in memory of someone who is no longer here. Walking for a cure. There are countless reasons to Walk for Sickle Cell. We hope you decide to join us as we uplift families, raise awareness, and provide support to hundreds of families statewide. We need your help to make a difference, and we know every step counts. Sickle Cell Association of Texas Marc Thomas Foundation’s virtual walk is a must to join.

Mark your calendars – the Walk for Sickle Cell is back. That’s right – on Saturday, September 3rd, we will be walking to uplift others, raise awareness, and provide support for hundreds of families. You can join us from anywhere – whether that’s your neighborhood, your gym, or your backyard, what matters the most is you joining us in our journey this year.

When:

Saturday, September 3rd, 2022

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September is National Sickle Cell Awareness Month. The Sickle Cell Disease Association of America invites you to join us for a virtual blood drive to support sickle cell warriors!

Did you know…

That blood transfusions are one of the most critical treatments for sickle cell patients, but less than 10% of Americans donate blood?

That sickle cell patients benefit most from blood transfusions from people of the same race or similar ethnicity, but only five percent of blood donors are of African ancestry?

Join us in recognizing National Sickle Cell Awareness Month and help us make a difference for SCD patients by pledging to donate blood. It takes one hour, and you could save someone’s life. Thank you for your support!

A virtual experience like no other, let's journey together with a WARRIOR WALKING THROUGH THE WARDS ( Houston's historic 1st through 6th Wards) Exploring the rich culture and history of the city of Houston along with facts about sickle cell trait and sickle cell disease you may not have known!  This year, MANY OPTIONS are available to be a part of the movement! Come along; learn something new and be a part of the solution through support.  Let's get to the end of this 21-mile journey (representing the same 21 years it took to get new treatment options)~ We're in this together!

When:

Thu September 1 - Sat December 31, 2022

Local groups, especially SCDAA community-based organizations, are welcome to customize it by adding their logo and contact information. You can see how this was customized for Illinois by SCDAI. If it is distributed without customization, use the national version with 1-800 number for contact.   

This brochure was developed by Dr. Wanda Whitten-Shurney of SCDAA-Michigan Chapter for counseling for sickle trait in newborns, as well as adolescents and adults. SCDAA MARAC agrees with the nuances prioritization of updated info. SCDAA would like to encourage use of this brochure as a shared national resource and will keep its logo on the upper right corner.  There is a lot more to sickle cell trait counseling (notably excellent materials in the CDC sickle cell trait toolkit) but this brochure is the kernel and the first step.

Inova is Northern Virginia’s leading nonprofit healthcare provider. Our mission is to provide world-class healthcare – every time, every touch – to each person in every community we have the privilege to serve. Inova’s 20,000+ team members provide more than two million patient visits each year through an integrated network of hospitals, primary and specialty care practices, emergency and urgent care centers, outpatient services, and destination institutes. Inova’s five hospitals are consistently recognized by the Centers for Medicare and Medicaid Services (CMS), U.S. News & World Report Best Hospitals, and Leapfrog Hospital Safety Grades for excellence in healthcare.

This virtual town hall will include various topics related to sickle cell management, treatment, advocates, services in the country, and more. All audiences are welcome.

Register Here

When:

September 21, 2022 

04:00 PM

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NICHQ joins the Sickle Cell Disease Association of America (SCDAA) to help focus attention on the need for research and treatment of sickle cell disease during September. The theme for 2022 is Sickle Cell Matters.

Sickle cell disease (SCD), an inherited blood disorder that is more prevalent in people of African and Latinx/Hispanic descent, affects approximately 100,000 Americans, and sickle cell trait affects an estimated 2 million individuals. People living with SCD experience acute pain crises, dangerous infections, and other serious health problems that can damage every organ in the body, requiring providers who are knowledgeable and understanding.

Join our efforts to bring attention to the unique experiences and challenges of people living with SCD and the variety of resources available to health care professionals! Use the hashtags #SickleCellAwarenessMonth and #SickleCellMatters2022 to help raise awareness on social media about sickle cell disease and sickle cell trait, and check out these helpful tools and resources.

Together we stand in support of sickle cell disease and sickle cell traits!

The Potter’s Smile is the only 501c3 in the United States and possibly the world, that addresses the dental issues associated with Sickle Cell Disease and the Sickle Cell Trait.  We are dedicated to dental education, dental research, and access to quality dental treatment.

The Potter’s Smile invites you to the Ribbon Cutting Ceremony.

When:

Sat, Sep 24th, 2022 

1:00pm - 4:00pm

Where:

2617 W Holcombe Blvd ste i, 

Houston, TX 77030, USA

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Dreamsickle Kids Foundation 5th Annual Las Vegas Sickle Cell Walk, this event is the only fundraiser we have to raise money and awareness for patients in Nevada affected with Sickle Cell Disease. Sickle Cell Disease is a rare genetic blood disorder that primarily affects those of African descent. There are 100,000 Americans living with Sickle Cell and 1000 of them reside in Nevada. 

Register here

Date:

September 24, 2022

Location:

7351 W Alexander Rd

Las Vegas, Nevada, USA

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Please join us for a fully vaccinated social fundraising event with live music, cocktails, refreshments, great conversation, and beautiful rooftop views overlooking the Potomac. RSVP by September 4th. If unable to attend, please help us to find a cure for sickle cell by donating.

When:

Sunday, September 11, 2022

2:00 PM to 4:30 PM ET

Where:

Capitol Overlook Lounge,

1331 Residences Maryland Ave.,

SW. Washington, DC, USA

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Join us to support Sickle Cell Warriors in Kentuckiana. Check-in starts at 8 am at Petersburg Park. The run/walk will start at 9 am and the walk will start at 9:30 am. 

Register to get a swag bag! Register before September 1st to get a free shirt. Sizes will be first come, first serve ON THE DAY OF THE WALK!!

Don't worry, if you don't meet the deadline you can still register and get a shirt at the walk! The price of registration will be $50 on the day of the walk.

When:

September 10, 2022

8:00 AM - 12:00 PM (EDT)

Where:

Petersburg Park, East Indian Trail, 

Louisville, KY, USA

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