The Division of Hematology/Oncology offers expertise in the diagnosis and treatment of a broad spectrum of blood disorders and malignant diseases. The Hemology/Oncology faculty participate in specialized patient care and research programs in the areas of solid tumors, hematologic malignancies, thrombosis, bleeding disorders, sickle cell anemia, and bone marrow transplantation. In association with other members of the UNC Lineberger Comprehensive Cancer Center, specialized interdisciplinary oncology clinics and conferences are held weekly in the areas of breast cancer, thoracic, gastrointestinal, genitourinary, sarcoma, neuro-oncology, melanoma, and head and neck malignancies. Centers which are central to implementing the patient care and research missions of the Division include the Lineberger Comprehensive Cancer Center, one of the foremost cancer research centers in the country, and the nationally recognized Hemostasis and Thrombosis, Hemophilia, and Sickle Cell Centers. Official website

The Vanderbilt-Meharry-Matthew Walker Center of Excellence in Sickle Cell Disease is your medical home for life-long care and support from people who know your name. We bring together primary care providers and specialists from local institutions under one roof to treat individuals with sickle cell disease. Services: -Regularly scheduled visits and access to doctors, nurses, staff, and family support between visits -Evening and Saturday hours -Pain management -Asthma management and lung testing -Management of acute chest syndrome -Blood transfusion therapy -Hydroxyurea -Dental and eye exams -Social services and mental health support -Transition from child to adult care Official website

Creator and founder of the Atlanta Sickle Cell Awareness Ride (SCAR), Lisa Dean-Touray, is a mother of a child with Sickle Cell and organized the event years ago to aid finding a cure for the disease. The ride was originally sponsored by International Riders MC with proceeds going to the Sickle Cell Foundation of Georgia. Although raising money to support the cause to end Sickle Cell is important, the secondary purpose Ms. Dean-Touray wishes to accomplish is a greater understanding of the disease among the community, which again is a valid method to decrease the spread of the disease. Through means of proficient recruiting, the Sickle Cell Awareness Ride has assembled a group of caring and supporting individuals willing to culminate success while guaranteeing participant enjoyment; to ensure the achievement of significant donations for a very worthy cause. The board is a proven team of educators, a fellow rider/officer of International Riders MC, and a professional accountant; all accustomed to a task of such great feats. The ladies of SCAR are volunteers willing to help Ms. Dean-Touray with the ride, whether it is through networking or setting up, they all are valuable to the success of the riding event. Official website

Sickle Cell 101 is a 501(c)(3) nonprofit organization that specializes in sickle cell education on social media and other platforms. Our slogan is, "education + awareness" because we strongly believe these two factors are vital contributors to the progression of the disorder, with the end goal of a universal cure. Through education we are able to equip those affected by sickle cell, around the world, with a comprehensive understanding of the disorder. Equally, by raising awareness, our goal is for sickle cell to become a household name to encourage genetic testing, generate funding, and further research efforts. Our mission is simple: We are a non-profit organization educating all people affected by sickle cell through the use of social media. Information presented by Sickle Cell 101 includes: general facts and information about sickle cell, genetics, statistics and calculating probabilities for inheriting the gene, defining terminology pertaining to sickle cell, health tips on managing the disease, sickle cell news and medical advancements, resources, and anything in between. Official website

Sickle Cell Carers Awareness Network (SCCAN) is a project that started in January 2008 in Jaiama Nimikor in Kono, Sierra Leone with the aim of raising awareness about sickle cell, its treatment, and prevention as well as providing practical support and care to people who care for sufferers (carers). This project is started by Mrs Sia Evelyn Nyandemo who had a passion to support and promote awareness about SCA to less privilege communities after caring for two of her own children who were sufferers who have passed away. Mrs Nyandemo has been using her personal resources, knowledge and passion to ensure this project is implemented. However, due to the level of work and the objectives set out for this project, it is inevitable that we embark on a Fundraising drive to ensure that this service continue to exist and meet the outcomes these communities have started benefiting from. The Sickle Cell Carers Awareness Network is a charitable organisation helping carers of children and adults suffering from Sickle Cell Anaemia disease in Kono, in the Eastern Region of Sierra Leone. This was in response to the need for communication, awareness raising and support amongst and for carers of sickle cell sufferers. Official website

The Sickle Cell Community Advisory Council (SCCAC) was started in 1999 as a collaborative effort between patients of the former Alta Bates Sickle Cell Program, the administrators of programs at the Children’s Hospital of Oakland, and the leadership of the Northern California Sickle Cell Center. Our original purpose was to serve patients transitioning to the hospital, and to meet the needs of known persons affected by sickle cell disease. What We Do: Host Family Forums - We provide an environment for families to increase their knowledge of this disease as well as to learn their rights in dealing with physicians and hospitals as they seek proper care. Outreach and Education - Our members participate in community forums, health fairs, & outreach meetings and speak to organizations and churches throughout the Bay Area. Support Group - We provide support groups for adults living with sickle cell disease and parents of children with sickle cell disease, covering a variety of topics that impact sickle cell disease. Speakers Bureau - Our board members are available to speak to groups of all types on the status of care, current treatment alternatives, and the general complexities of sickle cell disease. Official website

UCSF Benioff Children's Hospital Oakland offers the largest and most comprehensive Sickle Cell Program in the Western United States. Our pediatric specialists provide diagnosis, treatment and long-term health management for children and young adults with sickle cell disease of all types. Our clinicians will work with you and your child to develop a comprehensive treatment plan and strategies to minimize your child’s symptoms and avoid complications of the disease. Children's Comprehensive Sickle Cell Disease Center has been providing the highest standards of care in this field since 1973. In addition to treating those with sickle cell disease, we also research cures and treatments for sickle cell complications, offering the best opportunities for survival and preservation of quality of life for the whole family. The Comprehensive Sickle Cell Center at UCSF Benioff Children’s Hospital Oakland has both inpatient and outpatient services as well as specialty services for infants, children, adolescents, and adults with sickle cell disease. Our specialists include hematologists, pediatricians, internists, nurse practitioners, genetic counselors, social workers, and psychologists. Official website

The Sickle Strong Initiative is an organization whose aim is to raise awareness around sickle cell disease, its control and management. The organisation also seeks to decrease the stigma around patients suffering the disease and help create a positive attitude among these patients. The organization seeks to do this by helping and advocating for patients suffering with the disease through their engagement with governments and all stakeholders in the decision making processes as regards the care of this vulnerable group. Mission:-Raise awareness around the management, control, treatment, and healthy/positive living with sickle cell disease.-Counsel and provide support groups for patients suffering from Sickle cell disease, their immediate family and support systems.-Provide chemo prophylactic and financial solutions for patients suffering Sickle cell disease who cannot afford treatment and show need of assistance.-Assess and meet the needs of medical personnel who treat and care for patients suffering sickle cell disease. Official website

“Tackle Sickle Cell” is a campaign that aims to educate the public, increase blood donations, and raise money & awareness for the fight against sickle cell disease. This campaign is spearheaded by NFL stars & twin brothers, Jason & Devin McCourty. Jason & Devin McCourty are twin brothers, who were football standouts at Rutgers University and are both currently starting defensive backs in the NFL. Devin plays for the New England Patriots while Jason plays for the Tennessee Titans. Each brother has found individual success in the NFL. Jason led all NFL cornerbacks in tackles this past season with the Titans, while Devin made the Pro Bowl as a rookie in 2011 and played in the Super Bowl last year with the Patriots. They’ve done everything together their entire lives, so its no surprise that they’ve joined forces with their charitable efforts. Jason & Devin have seen first hand the devastating effects of Sickle Cell on family members and they are choosing to use their platform to help families in similar situations. The twins sought to partner with a non-profit that supports children and families battling Sickle Cell and were thrilled to find Embrace Kids Foundation. Official website

Children's Healthcare of Atlanta's Sickle Cell Disease Program is the largest pediatric sickle cell disease program in the US. It's focus is on prevention, treatment and follow-up care for sickle cell disease and its complications. They offer the following services to our patient families: -24-hour acute care -Health maintenance services -Comprehensive clinics, located at three sites in metro Atlanta -Specialty clinics -Transfusion services -Newborn screening and follow-up -New patient evaluations -Genetic counseling: Helping parents understand sickle cell trait and how it can be passed along to their children -Patient counseling and education: Teaching families tips on how to prevent infections, pain and other health problems related to sickle cell disease -Teachers to help prevent school disruption from missed days -Child life services to help with anxiety during procedures or interactions -Social work services to provide outside resources Official website