A new movement for patients who suffer from Sickle Cell Disease is in development at Loma Linda University Medical Center. The vision is to set a new standard of excellence in heath care delivery through several key care components tailored to this disease. Their goal is for your disease to be managed well while you are in and out of the hospital. Experiences and Offerings: -Caring and compassionate patient experience -Holistic healing environment -Sickle cell clinical pathways -Inpatient pain management -Practitioner education -Peer support Official website

Established in 1995, the Berman Institute now consists of more than 35 faculty from the Johns Hopkins School of Medicine, School of Nursing, Bloomberg School of Public Health, Paul H. Nitze School of Advanced International Studies and the Krieger School of Arts and Sciences. Faculty work collaboratively across the Institute’s program areas. Areas in which we work: Core Programs -Public Health Ethics -Clinical Ethics -Science Ethics Cross-Cutting Programs -Research Ethics -Global Bioethics The Berman Institute trains and mentors future leaders in the fields of bioethics, health and science through the Ph.D. concentration in bioethics and health policy, the Master of Bioethics Program, the Hecht-Levi Fellowship program, the Johns Hopkins-Fogarty African Bioethics Training Program; the Arts and Sciences minor in bioethics; the bioethics certificate, and intensive courses in bioethics. The Berman Institute also provides policy advice for government agencies, non-governmental organizations, and private sector organizations. Official website

Sickle cell disease affects many families. In fact, approximately one in every 365 African American children and one in every 16,300 Hispanic-American children will be diagnosed with sickle cell disease, making it the most commonly diagnosed disease in newborn screenings. Treating nearly 1,400 children a year, Children’s National is among the largest sickle cell programs in the country. They offer an array of services designed to meet all of your child’s health needs, with special focus on his or her safety and comfort. From dedicated pain clinics for older children to specialized infant sickle cell care, Children’s National delivers care and support to provide a sense of well-being and normalcy to children and their families. Official website

Transitioning from pediatric to adult providers is an essential step in the care of teens and young adults with sickle cell anemia. The Howard University, Center for Sickle Cell Disease, Adult Transition Program works to educate children and young adults about their disease and personal medical history and develop skill sets required to navigate the adult health care setting. Howard University's Center for Sickle Cell Disease (SCD) was founded by the late Dr. Roland B. Scott in 1971 to address the needs of patients and families in the Washington Metropolitan area affected by SCD. The Center is committed to a six-fold goal that includes comprehensive medical care, research, testing, education, counseling, and community outreach. Recently, the Center has expanded its clinical research program and developed a collaborative consortium with Children’s National Medical Center (CNMC) and in working together with Howard University Hospital and NIH, we are the Washington area’s leading provider of patient services for SCD. Official website

Thalassaemia and Sickle Cell Australia (TASC Australia) is a not-for-profit community organisation dedicated to: (A) Serving as a support network for Australians affected by genetic blood disorders (also known as "genetic haemoglobinopathies") like thalassaemia and sickle cell anaemia. (B) Seeking to raise public awareness of genetic blood disorders within Australia, and the need to encourage the public to be tested for these conditions. (C) Encouraging healthy members of the public to donate blood to the Australian Red Cross Blood Service, as fellow Australians who are affected by genetic haemoglobinopathies require regular blood transfusions in order to live and manage their condition. Official website

The Vascular Medicine Institute at the University of Pittsburgh (VMI) was founded in 2008 with the support of the Institute for Transfusion Medicine and the Hemophilia Center of Western Pennsylvania. It is part of the Department of Medicine in the University of Pittsburgh School of Medicine. Each of the multidisciplinary team of scientists have appointments in the Division of Pulmonary, Allergy and Critical Care Medicine, the Division of Hematology/Oncology, the Division of Cardiology, the Department of Pharmacology & Chemical Biology, and the Department of Pathology. In 2013, the VMI expanded into cardiovascular medicine, partnering with the UPMC Heart and Vascular Institute to create the Pittsburgh Heart, Lung and Blood Vascular Medicine Institute. The mission of VMI is to perform rigorous, cutting edge basic and translational research in vascular biology, guided by a systems biology view of the vasculature, where blood flow is regulated by the vessel, circulating molecules and blood cells. The research is driven by scientists with expertise in hemostasis, red blood cell biophysics, transfusion medicine, cardiovascular biology, mitochondrial biology, and nitrite-nitric oxide-reactive oxygen species biochemistry and signaling. Training the next generation of scientists in bench-to-bedside translational research is very important to the mission. Official website

The Sickle Cell & Hemoglobinopathy Center of Western New York (SCHC of WNY) at Women & Children's Hospital of Buffalo provides medical care, education, counseling and support for children and adolescents with sickle cell disease, thalassemia and other hemoglobin disorders. It exists within the Division of Pediatric Hematology/Oncology, which is part of the Department of Pediatrics and is affiliated with the University at Buffalo Jacobs School of Medicine and Biomedical Sciences. A diverse staff of physicians, nurse practitioners, nurses, social worker, psychologist, dietician and physical therapists work together to give a full spectrum of comprehensive care, as well as access to an array of subspecialty care, such as pulmonology, gastroenterology, neurology and nephrology. The SCHC of WNY promotes the highest standards of medical care and support to people and families affected by sickle cell disease and for the population at risk. Comprehensive subspecialty care by pediatric hematologists is given for both inpatients and outpatients, with emphasis on early detection, preventative care, and close monitoring and treatment for complications. Many patients are encouraged to seek amelioration of disease sequelae through hydroxyurea treatment chronic transfusion program or even recommendation for potentially curative stem cell transplantation. Close collaboration occurs with adult internal medicine providers for transition to adult sickle cell care for adolescents and young adults with availability of continued hematology consultation and transfusion management. Official website

The Sickle Cell Center at Texas Children’s Hematology Center offers comprehensive family-centered care for children with this complex blood disorder. Their individualized course of treatment includes patient care, education, psychosocial support services, screening and counseling for children and their families. Serving over 1,000 children each year, this program is one of the largest in Texas. The Sickle Cell Program offers the latest treatments including hydroxyurea, transfusions and stem cell transplantation. Their multidisciplinary team is made up of board-certified pediatric hematologists, hematology-trained nurse practitioners and physician assistants, research staff and social workers. In addition, they offer psychological support and counseling services to help families cope with difficult social, emotional and financial issues brought on by the disease’s medical complications, especially debilitating pain crises. Texas Children’s Sickle Cell Program offers excellent ambulatory services, including outpatient blood transfusion and pain treatment programs, a sickle cell pulmonary clinic, sickle cell stroke clinic and genetic counseling, all in one location. Official website

The Sickle Cell/Thalassemia Program at NewYork-Presbyterian Brooklyn Methodist Hospital (NYPBMH) provides comprehensive health care and treatment for pediatric, adolescent, and adult patients. As patients move from very young, through adolescence and into adulthood, NYPBMH is prepared to handle sickle cell disease and beta thalassemia at every stage of a person's life. Anyone who suspects they may have one of these diseases can make an appointment for initial testing. Services include testing, monitoring, vitamin therapy, medication, pain management, family planning and more. Official website

In addition to dedicated treatment programs in hemophilia, sickle cell disease, and thrombophilia, our physicians provide care to children with anemia secondary to hemoglobinopathy, red cell membrane or enzyme disorders, aplastic anemia (including Fanconi's anemia), thrombocytopenia (also known as ITP), neutropenia, polycythemia, and thrombocytosis. Hematological conditions treated here include: -Sickle cell disease -Hemoglobinopathies -Anemia -Congenital and acquired thrombocytopenia including ITP -Bleeding and clotting disorders Our pediatric hematologists have been delivering state-of-the-art care to all patients with sickle cell disease for several decades. Basic research at Mount Sinai has included gene therapy for hemoglobinopathy, studies on cell interactions that lead to the excessive adhesion of red cells and enhancement of fetal hemoglobin to minimize the symptoms of sickle cell disease. The Sickle Cell Program here is a comprehensive program designed to provide holistic care. Patients have access to social workers, genetic counselors, cardiologists, pulmonologists, neurologists, and psychologists. Together with the experienced Pediatric Intensive Care Unit staff, the hospital treats the most life threatening complications such as stroke and acute chest syndrome. The blood bank provides accessibility to hemopheresis for emergencies. Official website