The Mission of Kids Conquering SCD Foundation, Inc. is to dedicate with compassion to provide education, awareness, advocacy and outreach to improve the quality of life for individuals and families living with sickle cell disease and other hemoglobin disorders. Kids Conquering SCD Foundation, Inc. is governed by board of directors, whose members are from the Central Florida Community. Our board have dedicated hearts with a desire to help our community impacted by sickle cell and hemoglobin disorders. The Executive Director and Founder of Kids Conquering SCD, Foundation Inc. is Carla Lewis. Kids Conquering SCD, Inc. joins the fight against Sickle Cell and other hemoglobin diseases. We provide awareness, educate and support families, educate the community, promote testing for hemoglobin gene, support research of treatments, and collaborate efforts worldwide. Our mission will not be complete until a universal cure is found for sickle cell & other blood diseases. Kids Conquering SCD, Inc. is a proud member of the Sickle Cell Community Consortium, a joint collaborative organization nationally joining community based organizations together with advocates, researchers and public health supporters working together to find solutions to the many challenges posed by sickle cell disease. Official website

The Antigua and Barbuda Sickle Cell Association (ABSCA) in its present form operates since 2010. It is a non-profit organization with the explicit goal of improving the lives of Sickle Cell patients and their families. Our mission is to improve care for patients, educate patients, health care providers and general public about the condition and its management, to establish a statistic data base, to counsel patients and persons carrying the Sickle Trait. ABSCA has only about 20 members, consisting mainly of persons who have first-hand experience with SCD, be it as a parent or as a patient. ABSCA’s president, Dr. Edda Hadeed, is a pediatrician and neonatologist who joined the association end of 2013. Dr. Hadeed manages children with SCD on a regular basis and collaborates with Dr. R. Dickerhoff, Duesseldorf University, a renowned expert in the management of SCD. Official website

Sickle Cell Warriors of Southeast TX, Inc. is a non-profit company that provide individuals and families of people with sickle cell anemia different services such as tutoring, counseling, support groups, financial assistance etc., in order to help affected individuals, rise above sickle cell and the stigma that is carried along with it. It has been identified that less than 25% of Texas area people with sickle cell anemia have help outside of their family and friends. ​ Our vision is to be the most successful sickle cell organization within the southeast texas area with an array of well-informed, committed and active supporters. This organization was founded by two ladies with sickle cell anemia disease. The first Lakeesha Wilson and secondly Alandria Perry. The two of them have been working really hard to reach out and do as much as possible for the community in which they live. If you have Sickle Cell disease or trait, then join us, use the services we have available, and lets all work together to conquer and overcome the effects caused by this chronic illness. If you do not have this disease, we still need you. Please join our family of advocates by spreading awareness about the disease, donating or helping us to raise money for research, education and the well being of those suffering with sickle cell and their families. By working together, we can all make a difference and touch many lives in the process! Official website

Sickle Cell Society Ireland (SCSI) is the Official Umbrella organisation for all sickle cell support groups in Ireland. It is a parent led NGO Organisation working at local, regional, national and European Union level. SCSI works in partnership with Sickle Cell Society UK, Pan European Sickle Cell Alliance (PESCA ), Global Sickle Disease Network (GSCDN), Worldwide Initiative on the Social Study of Haemoglobinopathies (WISSH), Unit for the Social Study of Thalassaemia and Sickle Cell at De Montfort University, UK, Irish Blood Transfusion Services and the Children’s Hospital in Crumlin. The foundation of SCSI was laid in 2006 during a Trinity College Social Work Master’s Thesis (written by Esther Onolememen) which addressed African Parents’ Experiences of Living and Coping with Children with Sickle Cell Disease in Ireland. Esther Onolememen is currently doing a PhD in Public Policy addressing Health Policy implications of Sickle Cell Disorders in Ireland. Official website

It is our mission to serve as an advocate for adults and children in the Northern Virginia area. Heart of Gold Foundation is structured to educate, mentor, and support those that battle with Sickle Cell Disease. Our vision is to give adults and children a place to go to, when they feel as if no one else understands. It is our hope to provide those in the Northern Virginia Area with an organization that is familiar with the daily struggles and limited resources that are often associated with Sickle Cell Disease. The Heart of Gold Foundation, has chosen to be the backbone for a disease that is close to their hearts, because inside all of us their lies a Heart of Gold. When, a person may feel tired of being sick, tired of just being, they should always know, that we are here, because we have been there. And when they need someone to understand or when they need to feel love, here we are. Official website

Machnik Sickle Cell Foundation Uganda (MSF) is a charitable Non-Profit organization with a focus on supporting people with sickle cell disease. MSF believes that people with sickle cell disease have the right to quality care which can be achieved through funding which is used to educate health professionals about the condition. They aim to provide this care through funds obtained from our donors. MSF does not discriminate between the types of sickle cell disorders or the ethnic groups as well as political interest concerned, all genders are equally affected, and should have equal access to support and services within a confidential and sensitive environment. MSF respects the views of every patient. We are looking for a network of committed volunteers, who will play an important part in running MSF as a charity organization, providing administrative backup, and helping with fund-raising activities. Official website

Association of People Living with Sickle Cell Disorder (APLSCD) is an association that caters for the medical and welfare needs of persons living with sickle cell disorder, and registered with Nigerian Corporate Affairs Commission with the registration number CAC/IT/86143. APLSCD was founded in June 2015 by the coordinator Aisha Edwards after witnessing the neglect and stigmatization meted on persons living with sickle cell disorder. Being a victim of this neglect and stigmatization from NGOs, Government and the society, it became not pertinent to have an association where all members are victims of this disorder, to cater for their needs, and create a loud voice for these persons in the society. APLSCD has began a wide outreach and sensitization campaign covering all the local government areas in Anambra State and spanning to Enugu, Rivers, Adamawa and Ebonyi states, evident from the attendance of sickle cell persons from these states during the World Sickle Day, which was organized by APLSCD at Nnamdi Azikiwe University, Awka, Anambra State. Official website

The Sickle Cell Disease Association of West Alabama serves as an Advocacy Service Agency. These services include but are not limited to: Disseminating SCD/SCT information, attending Health Fairs, and participating and/or host local Advocacy Events. The West Alabama Sickle Cell Association seeks to improve the health and status of persons affected or at risk of sickle cell disease and related hemoglobinopathies within West Alabama through seven broad categories of service; 1) public and professional health education, 2) screening for detection, 3) medical referrals, 4) genetic counseling, 5) psychosocial supportive services, 6) pediatric sickle cell clinics. Official website

Sickle Cell Society of Trinidad and Tobago is a non-governmental and non-profit making organization dedicated to the proper care and control of sickle cell disorder in Trinidad and Tobago.   Vision: To ease the burden of sickle cell disorder on the country and to guarantee that all affected persons can live regular pain-free lives. Mission: To build a world class National Sickle Cell Clinic that will drive the search for effective solutions to sickle cell and sickle cell related disorders. Official website

Advancing Sickle Cell Advocacy Project (ASAP) is a nonprofit organization composed of sickle cell warriors, sickle cell trait carriers, caregivers and those who have a passion to see a change within the sickle cell community. Believe it or not this organization started all from a phone conversation which led to us as individuals uniting to make a much needed change in the South Florida Sickle Cell Community. We are dedicated to breaking the stigma associated with SCD, to invoke a change in treatment in the healthcare community, and safer pain management procedures for patients not only here in South Florida, but around the United States. We want to educate patients and their families on healthier lifestyles that could possibly cut down on their hospital visits. ASAP desires to see patients live longer and more pain free lives by maintaining good health emotionally, mentally, and physically. Official website