Sickle Cell Natural Wellness Group Inc. is dedicated to spreading sickle cell awareness while promoting a healthy and creative lifestyle by way of art therapy, music, spoken word, organic foods, fashion and education. Their mission is to show the importance of living a healthy and creative lifestyle to overcome adversities. Their focus is to provide events that give people of all cultures, ages and background the opportunity to engage in Therapeutic fun. Having a good time while learning healthy lifestyle techniques, as well as exposing their minds to various art forms and partaking in sickle cell advocacy will have our audience captivated and wanting more. Official website

Sickle Cell Family Support Network Inc. was developed specifically to directly support families of children who suffer from Sickle Cell disease. SC Family Support Network Inc (SCFSN) is focused on providing direct services to support SC families while their child is in the hospital, home-bound along with assistance with educational services with the highest levels of customer satisfaction. The official launch of services will be in 2016 and all of their services will be free for families.  They will be focused on providing high-quality services and customer satisfaction. SCFSN will work effortlessly to provide direct services that will support families managing their children's SC to ensure a healthy & prosperous family life. Official website

SCN was founded in 1995 after a group of stakeholders associated with the Sickle Cell Summer residential camps and other stakeholders in the Sickle Cell community met in response to feedback about the many challenges confronting Sickle Cell families surrounding health care, patient advocacy, and other related issues. The stakeholders agreed that a grassroots organization would both provide direct services to the Sickle Cell community and elevate Sickle Cell place in the national agenda. Sickle Cell Community Health Network (SCCHN) helps individuals and families become actively involved in the health and wellness of themselves and their loved ones who are affected by the disease through community outreach, education, youth and family oriented programs. SCCHN is a primary resource for the Sickle Cell community for information and referral, support, and community building activities. Official website

Martin Center Sickle Cell Initiative is a 501(c)(3) human service agency dedicated to aiding and enhancing the lives of those affected by Sickle Cell. It was founded in 1969 by the late Reverend Boniface Hardin, O.S.B., and Dr. Raymond Pierce and named for Dr. Martin Luther King, Jr. and St. Martin dePorres. Martin Center was originally founded for the purpose of combating oppression, particularly racism. Since Sickle Cell continues to be one of the most neglected and underfunded diseases on the globe, the philosophy of MCSCI is to eliminate Sickle Cell Disease as a health disparity through supportive services, education, and advocacy. Official website

The American Sickle Cell Anemia Association (ASCAA) is a 501(c) 3 organization that provides quality and comprehensive services through diagnostic testing, evaluation, counseling and supportive services to individuals and families at risk for Sickle Cell Disease and it's variants. The organization currently provides a wide range of services to those individuals and families with either sickle cell trait or variants of the disease itself. Key services include: ongoing follow-up diagnostic testing, counseling, and tracking services for parents with infants who screen positive by the State Laboratory; Family Counseling and Support Services; coordination of medical, social services, education and support for the program's clientele; teacher education and screening services delivery at upwards of 85 local health fairs. In addition, ASCAA makes outreach to the region's African American, Hispanic, Mediterranean, and Arab communities for family education and the identification of the incidence of sickle cell disease. Official website

The Sickle Cell Aid Foundation (SCAF) is a registered Non-Governmental Organisation. Their main objectives are: firstly, to create intense and exigent awareness to prevent new cases of Sickle Cell Disease (SCD) and secondly, to provide specialist healthcare and support for sickle cell patients and their families.   SCAF's mission is: -To make Nigeria free of Sickle Cell Disease and an excellent standard of healthcare service for those already living with the condition. -To annihilate the inheritance of Sickle Cell Disease by a widespread and persuasive awareness campaigns and to provide the best healthcare for Sickle Cell patients in Nigeria by working towards the creation of Sickle Cell Specialist Centres in all states of the federation. Official website

The Northern California Network of Care for Sickle Cell Disease and the California Rare Disease Surveillance Program have recently partnered to further enhance the California Sickle Cell Resources website. Through the collaboration, both programs hope to provide necessary resources regarding Sickle Cell Disease (SCD) for consumers and health care providers in California. The Northern California Network of Care for Sickle Cell Disease, at UCSF Benioff Children's Hospital Oakland, launched in 2009 as one of the Health Resources and Services Administration´s (HRSA) programs for sickle cell disease (SCD). HRSA has teamed up with programs around the country to: -Understand the health care experiences of people with SCD, and -Test out different ways to improve those experiences. The Sickle Cell Data Collection program in California collects and analyzes data on the health and health care of Californians living with sickle cell disease (SCD). The data will help improve the health, outcomes and quality of life of these Californians by informing decisions about how best to meet their needs. The project is run by the California Rare Disease Surveillance Program, a part of the California Environmental Health Tracking Program and the Public Health Institute. Official website

The Sickle Cell Disease Foundation of California (SCDFC) is the first and oldest non-profit, social service, sickle cell disease organization in the United States today. Founded in 1957, the Sickle Cell Disease Foundation of California has maintained a viable and reputable organization for over 50 years. SCDFC addresses the needs of individuals with sickle cell disease and their families by emphasizing educational and support programs and services that meet the physical, psycho social and economic needs of our clients. With a growing population of individuals with sickle cell disease and sickle cell trait, the primary focus of the Sickle Cell Disease Foundation of California is to educate, screen and counsel those persons at risk of having children with sickle cell disease and other hemoglobin disorders. Official website

In 1971 the Sickle Cell Disease Association of Illinois (SCDAI) was founded under the name Midwest Association for Sickle Cell Anemia (MASCA). As a founding member, SCDAI is a part of the Sickle Cell Disease Association of America (SCDAA), a 57 member community-based membership organization, in over 300 communities nationwide and Canada.The primary mission of SCDAI is to enhance the quality of life for people with sickle cell disease and their families. To effectively achieve this goal, SCDAI acts as an advocate for improved healthcare and services for sickle cell patients by educating and informing the community through outreach programs. Official website

Sickle Cell Foundation Nigeria's mission is: -To alleviate the burden of sickle cell disorder on the country and to ensure that all affected persons can live normal pain-free lives. -To develop a world class National Sickle Cell Centre that will drive the search for effective solutions to sickle cell and related disorders. Sickle Cell Foundation Nigeria has initiated a database of people living with Sickle Cell Disorder in Nigeria. This would be a valuable resource for planning for better health care, for essential communication and for monitoring survival trend. If you know anyone with the Disorder, please encourage them to come to register. Official website