The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change. Official website

The Center of Excellence in Sickle Cell Disease, directed by Elizabeth S. Klings MD, supports the highest quality of patient care in an attempt to make Boston Medical Center (BMC) the treatment facility of choice for Boston-area patients with sickle cell disease. The Center also promotes interactive basic and clinical research and patient and professional educational activities. Official website

St. Jude provides outstanding treatment and educational resources to help patients with sickle cell and other blood disorders live long, happy, and healthy lives. From exceptional patient care to innovative research, St. Jude is one of the nation's leading centers for sickle cell disease. St. Jude is the primary treatment center for children with sickle cell disease in the Memphis area. They also consider referrals of children who are eligible for an open clinical trial. St. Jude has been researching sickle cell disease since the hospital opened in 1962. Their milestones are many, and include: -The first research grant ever received by the hospital was for the study of sickle cell disease. -In 1983, a St. Jude patient was the first in the world to be cured of sickle cell anemia through a stem cell/bone marrow transplant. Official website

The Sickle Cell Society was first set up as a registered charity in 1979. It was formed by a group of patients, parents and health professionals who were all concerned about the lack of understanding and the inadequacy of treatment for people living with sickle cell disorders. The Society is managed by a committee of 10 volunteers elected at the Annual General Meeting, and they meet each month. The Management Committee is accountable to the members and works with a small core of paid staff to further the Society’s aims by providing special services and welfare schemes for sickle cell sufferers. Sickle Cell Society's vision is to be the most successful sickle cell organisation nationally with a wide network of well-informed, committed and active supporters working at local, national and international levels. Official website

University of Cincinnati Medical Center Adult Sickle Cell Center understands that children who grow up with the hereditary blood disorder sickle cell disease won’t outgrow it. They help children and young adults make the transition to adult care. They also continue to provide comprehensive care, as well as care for secondary conditions related to sickle cell disease as patients become older. The highly-trained specialists who provide care at the Adult Sickle Cell Center are faculty members of the University of Cincinnati College of Medicine. Donald Rucknagel, MD, PhD and George Atweh, MD, are at the core of the sickle cell disease care team and have combined treatment experience of over 70 years. Official website

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