AIMS: • To use all available resources to promote public awareness of sickle cell disorder/disease. • To encourage the development, implementation and evaluation of a comprehensive Sickle cell programme for Grenada, Carriacou and Petite Martinique. • To develop a register of affected individuals. • To provide education, counseling and welfare for those affected and their caregivers and families. • To lobby providers of health and social care to improve the services for affected individuals. • To enable those affected to realize their full potential. • To encourage screening of the population to identify persons who are carriers of the gene so that they can be offered information and counselling. Official website

Children's Sickle Cell Foundation have continued to impact the lives of children with sickle cell disease (SCD) by providing educational support services including educational advocacy, school work retrieval while the child is absent from school and loaner laptop computers to prevent children from falling behind when their illness interrupts their education. Official website

SCANJ is a 501c3 non profit community based agency established on September 1, 2009 to assist the sickle cell community, especially adults, with non – medical needs such as, support groups, transition, education, access to research, resource sharing, family follow up and other programs that improve their quality of life. SCANJ seeks to work in partnership with the many dedicated health care professionals who provide much needed care for the sickle cell community and is open to individuals, sickle cell treatment centers, health care providers and organizations that support sickle cell disease services in the State of New Jersey. Official website

The vision for a national coordinated approach to addressing issues related to sickle cell disease was unveiled in 1971 when representatives of 15 community sickle cell organizations met at “Wingspread,” a Racine, Wisconsin conference center, as guest of the Johnson Foundation. Out of that meeting, the National Association for Sickle Cell Disease was created. The name was changed to Sickle Cell Disease Association of America, Inc. in 1994. Our mission: “To advocate for and enhance our membership’s ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease. The Strategies defined at the “Wingspread” meeting laid the foundation for today’s Association. -Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family. -Prepare and distribute substantive educational materials. Official website

The Sickle Cell Association is a not-for-profit organization that strives to diminish suffering and improve the quality of life for those individuals affected by sickle cell disease. They are committed to raising the public’s awareness and providing education to patients, their families, health professionals, legislators and the general public about sickle cell disease, its management and its challenges. Sickle Cell Association Mission is to support the sickle cell community while working to eliminate the disease through collaborations on research, education and resources. Official website

Sickle Cell Association of Uganda is now the only grass roots organisation representing the interests of patients in Uganda. They strive to change the perception that the majority of the population has in Uganda about the disease - that those who have this disease are worthless people in society, worth stigmatising and discriminating against. Through counselling and education they strive to improve the lives of these families. Mission Statement: Empower the masses (general public) about sickle cell disease so that the occurrence of the disease, and its complications, can be reduced. This will enable individuals to have a purposeful and meaningful life through understanding the principles of healthy living. Official website

SCTI's Mission is to fight the growth of Sickle Cell Disease (SCD) and Thalassaemia in Ireland and create a proper support network between the patients, the community and the health professionals. Sickle Cell & Thalassaemia Ireland is the official organization set up and run by Sickle Cell and Thalassaemia families, patients and volunteers to raise awareness and support of Sickle Cell and Thalassaemia in Ireland through educational workshops, seminars, media, printed information, promoting genetic screening and to encourage public policy change. Official website

Sickle Cell Awareness Group of Ontario (SCAGO) is a membership based, patient support and advocacy organization. They put patients and families affected by Sickle Cell Disease first, by advocating on their behalf with government, schools and the healthcare community. SCAGO understand the challenges faced by people with sickle cell disease and their family members. This is why they have created various supportive programs such as Learning for Life Seminars, the Adult Peer Support Group and the Parents Support Network. They contribute to the educational advancement of students with SCD by providing scholarships and grants. Through our activities, they provide support (mental, emotional and physical) to patients and their caregivers. Official website

Sickle Cell Warriors, Inc. is a non-profit charitable organization dedicated to education, empowerment, and awareness about sickle cell disease. Their mission is to inspire those affected by sickle cell. Sickle Cell Warriors, Inc. is dedicated to providing resources, information, education, research, and support to the sickle cell community. Sickle cell warriors are powerful people with an indomitable spirit. They are often in a constant fight on a daily basis to keep our head above water, deal with the pain, make the right decisions in life, deal with finances, medical bills and handle the backlash, negative vibes and criticism that having sickle cell brings. Official website

Since 1971, the Sickle Cell Foundation of Georgia, Inc. has stood as a bastion of hope for victims of Sickle Cell and other abnormal hemoglobin. Generous supporters, a dedicated staff, a dynamic Board, and caring volunteers make the Foundation and all of its programs and services possible. Sickle Cell Foundation of Georgia, Inc. (SCFG) is one of the oldest sickle cell-focused institutions in the nation. Their mission is to reduce the incidence of sickle cell disease, to monitor the incidence of sickle cell, and to help improve the quality of life for persons afflicted with the disease. To achieve their directives, the Foundation sponsors educational programs, conducts testing, counsels families, supports healthcare providers, and coordinates activities that benefit patients throughout the year. The Foundation works daily with the State of Georgia, medical facilities and personnel, Sickle Cell Support Groups, physicians, nurses, clinics, social workers, volunteers, and other organizations to deliver, and to help facilitate, client services. Official website