Sickle Cell Disease is a painful disease and those suffering from this painful disease are not just fighting daily to survive but also struggle daily to live normal lives. We call them our Sickle Cell Troopers. Glory's Hope Sickle Cell Foundation (GHSCF) is here to shed light on this painful disease and support our troopers in the fight against Sickle Cell. We will fight until the battle is won against SCD. GHSCF is involved in community outreach and educational programs all over the United States and the continent of Africa. Our undertaking includes but is not limited to educational promotions that build awareness of SCD and related circumstances and programs that provide services such as mentoring, tutoring and educational support for individuals and families impacted by sickle cell disease. GHSCF will continue to support and fight along with parents and patients of SCDs in their many challenges. It is anticipated that many new programs will be developed shortly actually to serve those group affected by SCD. Official website

Sickle Cell Hope Alive Foundation (SCHAF) is a non-governmental non-profit organization. The Foundation is dedicated to enhance awareness and educate Nigerians on Sickle Cell Disease. It also wishes to bring hope, create happy memories, improve the quality of life for individuals who experience life-altering situations caused by Sickle Cell Disease (SCD). The Foundation is blessed with a multidisciplinary team of Researchers, Medical and community-oriented professionals, all working together to assist in facilitating improved care of those affected with SCD. SCHAF assists children, young adults and their families through several key programs available on our Website. In keeping with our mission, we believe in celebrating life and encouraging those affected by SCD and their families to remain hopeful. Our efforts are made possible through the generosity of caring individuals, corporations and foundations across the Country. Official website

As a non-profit 501(c)3 organization, Sickle Cell Disease Association-St. Petersburg strives to provide current, accurate information your family can depend on. Our mission is: -To educate and improve public understanding of Sickle Cell Disease and Sickle Cell Trait-To enhance the quality of life for individuals affected with Sickle Cell Disease, and facilitate activities to lend economic, psychological, and social supportOur clients come from all walks of life. Anyone that has sickle cell disease and lives in South Pinellas county can join the St. Petersburg Chapter. If you live outside of the area, contact our office and we will find the nearest chapter for you. Official website

Colorado Sickle Cell Association, Inc. is a community organization that is based on the belief that our patients and families needs are of the utmost importance. Our entire team is committed to meeting those needs, to the best of our ability. We are a volunteer/non-profit organization and we sustain our services through events and donations throughout the year. Our mission is to provide Sickle Cell education & resources, counseling, health care referrals and sponsor blood drives. Official website

The Sickle Cell Association of Hillsborough County was established in 1976. For over 35 years, it has provided materials to educate persons with sickle cell concerning medical, sociological, and psychological implications of sickle cell disease and trait. Counseling is provided to individuals and families diagnosed through the Newborn Screening Program. Educational programs are conducted to community groups, health care providers, and public and private schools. The organization also provides medical and social services referrals to individuals and families affected by disease. Their outreach programs seek to do the following: -Openness and empathy for sickle cell disease/trait patients and their families -Understanding the use of evidence-based strategies to prevent hospitalization and burdens on the system -Teaching best treatment practices to healthcare providers and educating patients and their families about ways to live with this chronic condition with no cure -Referrals to medical professionals for appropriate medical care, focused on improving outcomes -Empowering our community through increased knowledge and awareness to contribute toward helping SCA find a cure -Assisting patients with identifying resources and services to improve the quality of their lives -Counseling patients with disease/trait and their families -Health fairs which screen individuals and raise awareness about the condition Official website

The Sickle Cell Disease Association of America – Mobile Chapter (SCDAA-MC) is a 501(c)(3) nonprofit organization, governed by a volunteer Board of Directors. The Chapter was incorporated in 1976 and is a United Way partner agency. The Association works closely with the Alabama Department of Public Health, USA Comprehensive Sickle Cell Center, Franklin Primary Health Center, local county health departments, and the Guadalupe Center. Official website

The Sickle Cell Council of New Mexico serves as a Direct Service Agency. These services include but are not limited to: Case Management, Testing & Screening, Counseling and/or Medical Home Assistance. Their mission is to provide education, blood screening, genetic counseling and referrals for sickle cell conditions. Official website

The Northeast Louisiana Sickle Cell Anemia Foundation (NLSCAF) endeavors to remove socioeconomic and medical barriers presented by Sickle Cell Anemia in the lives of individuals, families, and communities, thereby, maximizing the enjoyment of life. Our mission is to enable individuals with sickle cell anemia to live lives to the fullest extent possible unhampered and uncompromised by their sickle cell conditions amd to increase the knowledge and understanding of sickle cell disease as a health problem through professional standards of administration, health care, public relations and fundraising. Office Hours: Monday through Thursday 8:30am - 3:30pm Friday 8:30am - 12:30pm Official website

The Division of Hematology provides specialized care for patients with complex hematologic conditions i.e., conditions that primarily affect the blood. Physicians from this division evaluate and manage patients through several specialized and statewide referral centers and programs. Hematologists with significant expertise in various blood disorders participate in providing innovative comprehensive diagnosis and treatment. Official website

The Sickle Cell Disease Program at Children’s is one of the nation’s largest serving pediatric patients. It focuses on the prevention of disease complications and management using the newest treatment strategies, including hydroxyurea, chronic transfusions, stem cell (bone marrow) transplantation and state-of-the-art approaches to infection prevention, pain management and treatment of specific organ-related complications (chest syndrome, priapism, avascular necrosis of the femoral head, etc.). Children's Health offers standard treatment modalities, such as chronic blood transfusion programs, hydroxyurea therapy and stem cell transplantation. We are also studying molecular targeted treatment for pain control in sickle cell disease. Hematologists on the medical staff at Children's have spearheaded the development of a comprehensive set of diagnostic and management guidelines for children with sickle cell disease that have been endorsed by the Texas Department of Health. Sickle cell patient information, such as every hospitalization and major complication, has been collected for 20 years on a computerized database, which helps improve continuity of care and research. Official website