Our haemoglobinopathies service sees children with sickle cell disease, thalassaemia and other disorders of the haemoglobin – the substance in our blood that carries oxygen around the body. The service is run with the South Thames Sickle Cell and Thalassaemia Network and King's College Hospital. We work closely with colleagues in adult haematology and in the community, based at the South East London Sickle Cell and Thalassaemia Centre, Kennington. The centre provides a range of specialist services including full transcranial doppler scanning (TCD), a test that uses ultrasound to measure how fast the blood flows through the blood vessels within the brain, for children aged 2-16 years. We also have a stroke prevention blood transfusion programme for children. Official website

Sickle cell disease (SCD) is a genetic disease that primarily affects African-Americans. It creates red blood cells that have an abnormal "sickle" shape instead of a normal disc shape. Sickle cells carry less oxygen and can interrupt healthy blood flow, eventually leading to tissue and organ damage. The Sickle Cell Clinic at Froedtert Hospital provides comprehensive care for adults with sickle cell disease. Patients receive ongoing care including drug management and pain management. Infusion services, including automated red cell exchange, are overseen by a physician who is board-certified in transfusion medicine. Patients manage all their acute health concerns through the clinic, without the need to go to a hospital emergency room, in most cases. All patients receive education, coaching and follow-up support. The adult Sickle Cell Clinic also partners with Children's Hospital of Wisconsin to ensure a smooth transition from pediatric to adult care. The E.A.S.E program (Empower Adolescents with Sickle Cell Disease to Effectively Transition) helps prepare patients for their new role as independent adults managing their disease. The Sickle Cell Disease Clinic offers: -Routine health care by appointment -Pain management -Infusion services -Social services -Pharmacy -Immunizations -Urgent care access -Education -Transition Program -Follow-up care -Community resources -Coaching -Support group -Research participation Official website

The Division of Pediatric Hematology at Columbia University is committed to outstanding patient care, research, and education. Our mission is three-fold: 1) to provide personalized high quality, comprehensive care of children and adolescents with hematologic disorders; 2) to promote advances in biomedical research in the management of hematological conditions; and 3) to foster academic experience, education and training. Our Faculty provides expert inpatient and outpatient services from early diagnosis to continuing care and follow up of a wide spectrum of blood-related diseases. Our newly established St. Giles Comprehensive Sickle Cell and Thalassemia Center provides comprehensive, family-centered care to pediatric patients with sickle cell disease and thalassemia. The Center is focused on guaranteeing consistent provision of the best evidence-based treatments, assuring early recognition of risks of preventable complications and providing dependable support for effective family and patient self-management. The program provides a variety of services to the communities of Harlem, Northern Manhattan, and the tri-state area, including newborn screening in sickle cell disease, stroke prevention, chronic transfusion and iron-chelating therapy, pain management, community outreach, and patient education programs. Official website

Colorado Sickle Cell Treatment and Research Center is the region's only source of comprehensive medical care and special expertise in hemoglobinopathies. We are located on the University of Colorado Anschutz Medical Campus in Aurora, Colorado. Mission: -provide comprehensive care to all persons with sickle cell disease and other hemoglobinopathies; -conduct research to elucidate the pathophysiology of sickle cell disease; -develop and implement treatments and systems of care that prevent or minimize complications and that prolong and improve the quality of life. Official website

Each person with sickle cell disease is an individual. Some aspects of patients with a certain disease, such as sickle cell disease, will be the same but many things will be different. At the Brigham and Women’s Sickle Cell Disease Clinic, we understand that completely. We offer comprehensive care to meet individual needs. Whether a person is seen during a routine, scheduled appointment or during an acute episode, our clinicians treat the entire person taking into consideration the specific needs of each patient. Not only do we provide our patients with comprehensive medical care, we provide the resources to help with managing the disease day-to-day. A team of experienced physicians, nurse practitioners, nurses and social workers are dedicated to the care of each patient in living a full life. Our day hospital is located on the 8th floor of the Yawkey Building at the Dana-Farber Cancer Center. We offer urgent, same-day appointments for hydration with intravenous fluids and pain management. Our patients are admitted to the medical floors of Brigham and Women’s Hospital for evaluation and management of complications of sickle cell disease. Official website

The Sickle Cell Disease Program at Ann & Robert H. Lurie Children’s Hospital is a nationally recognized center of excellence that provides comprehensive sickle cell disease care to manage the disease and prevent its complications. Our program includes: -Expert clinical care -Family support services -A cooperative blood donor program -Community outreach​ -Education -A wellness initiative -Research into the nature, causes and treatments of hemoglobin disorders Our staff consists of full-time pediatric hematologists, nurse specialists/nurse practitioners, a genetic counselor and a social worker dedicated to the program. The program is led by Robert I. Liem, MD, Director of the Comprehensive Sickle Cell Program and Associate Professor of Pediatrics at Northwestern University Feinberg School of Medicine. Dr. Liem is board-certified in pediatric hematology/oncology and pediatrics. Official website

The Collaborative is a joint effort between Community Blood Center of the Carolinas, regional healthcare providers, sickle cell advocacy partners and local African American community leaders. We have come together to champion the needs of sickle cell patients by raising awareness and engaging the community. We believe compassionate influencers like you can make a difference in our community. With partners like Carolinas HealthCare System, Piedmont Health Services & Sickle Cell Agency, and individual community advocates, we’re excited about the difference this collaborative can make in the lives of local sickle cell patients. Our mission is to advocate for local sickle cell patients in need of specially matched blood from African American blood donors. The collaborative seeks to educate and inspire African Americans to host community blood drives and donate blood so the needs of local sickle cell patients will be met by local donors. Our vision is to cultivate hope, inspire compassion and improve the quality of life for local sickle cell patients. Official website

The mission of the Mississippi Sickle Cell Foundation is to enhance the quality of life for individuals living with sickle cell disease through the support of research, public activities and awareness, and patient/family education. MSCF sponsors several events throughout the year including a Sickle Cell Camp each June, when youth living with the disease take a four-day trip to Holmes County State Park in Goodman, MS to spend quality time and have fun with other families going through the same experiences. The camp is one of many activities supported through the Annual Gala. Official website

Sickle Cell Anemia Awareness of San Francisco (SCAASF) is a 501(c)3 non-profit organization that came into existence in 2014 after our founder's son Kareem M. Jones passed away. Our mission is to bring about a greater awareness and advocate for improved healthcare. Awareness is important for the understanding of one's own Sickle Cell status as well as being aware of new therapies and legislation. Our Goals: We are reaching out for support, sponsorship and partnerships with various organizations in the Hematology/Oncology world, i.e. Foundation of Sickle Cell Research, (www.fscdr.org); Sickle Cell Natural Healing, (www.ssnaturalhealing.com); Global Blood Therapeutics (www.globalbloodtx.com). Our goals are to educate, counsel, and advocate for patients through various resources along with the dissemination of information & literature about the disease and its progress. We hope to create positive dialogue between patients and the medical industry to understand their needs in more detail and to gain an element of trust. With our efforts and your support, we can get this disease the recognition it so desperately needs so we too may have a stand alone Sickle Cell Anemia Care & Research Network in the San Francisco. Help us make this disease a disease of the past and not the future. Official website

New York State Sickle Cell Advocacy Network, Inc. (NYSSCAN) is a 501 (c)(3) tax-exempt, nonprofit, charitable, broad-based community organization. We are dedicated to servicing children and families with sickle cell disease, thalassemia, the trait, and other chronic conditions. Established in 1978 as the Queens Sickle Cell Community Network, we subsequently became incorporated in 1997 and changed our name to Queens Sickle Cell Advocacy Network (QSCAN). Recently, we became New York State Sickle Cell Advocacy Network, Inc. (NYSSCAN). We collaborate with health care professionals, government agencies and programs, private institutions, and interested community groups for the management and eventual eradication of the Sickle Cell Disease. Our Mission and Vision: A deep sense of commitment; it focuses on those with Sickle Cell conditions. We provide a clear sense of direction for families and individuals, enabling them to actively participate in their communities and health care needs. We collaborate with researchers, participate in clinical trials, and collect data for the management and treatment of sickle cell disease and eventual eradication of the disease. Official website