Maryland Sickle Cell Disease Association

The Maryland Sickle Cell Disease Association, Inc. (MSCDA) is a 501 (c)(3), tax exempt nonprofit organization that was incorporated in 2006. MSCDA was formed by concerned parents and interested individuals seeking to improve the lives of persons affected by Sickle Cell Disease in Maryland. MSCDA seeks to work collaboratively with patients, families, healthcare providers, federal and state agencies and other community based organizations to promote advocacy, education, research and excellent healthcare delivery. Its mission is to improve the quality of life for those affected by sickle cell disease by promoting advocacy, education, research and excellent healthcare delivery. Official website
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Michelle’s House (Sickle Cell Disease Association of America Southern CT)

At Michelle's House, home of the Sickle Cell Disease Association of America, Southern Connecticut (SCDAA.SC), we embrace prevention strategies to enhance the quality of life and well-being of the community affected by sickle cell disease (SCD), traits and related conditions and provide individuals and families with critical education and access to support services through partnerships and advocacy. Our Vision To enhance all aspects of the quality of life of the sickle cell community inclusive of finding a cure! Official website
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Sickle Cell Program at UI Health

The Sickle Cell Program at UI Health is the largest in the Midwest, providing individualized care for pediatric, transitional, and adult patients. Patients in the Sickle Cell Program have access to a number of supportive services, including: Counseling, Education and Outreach, Support Groups — pediatric and adult, National research studies. For more than 50 years, UI Health has been a pioneer in sickle cell research and treatment. Our mission is to improve the quality of life for individuals with sickle cell and reduce the prevalence and mortality of the disease. Today, UI Health has cured 25 patients of sickle cell disease through bone marrow transplantation — 20 from matched sibling donors, 5 with half-matched relative donors — and without the need for preparative chemotherapy. Official website
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Southeast Alabama Sickle Cell Association

The Southeast Alabama Sickle Cell Association, Inc. (SEASCA) is a nonprofit organization supported by state funds and private donations. The association was established in 1974 and incorporated on June 18, 1975 in Lee County, Alabama. The corporation was established to provide services related to sickle cell anemia in Southeast Alabama. It's mission is to stimulate and develop awareness concerning sickle cell hemoglobinopathies, thereby promoting positive healthy attitudes concerning sickle cell testing, counseling and education. Counties We Service: -Barbour -Houston -Bullock -Lee -Dale -Macon -Henry -Pike -Geneva -Russell Official website
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Sulzner Sickle Cell Anaemia Foundation

Sulzner Sickle Cell Anaemia Foundation is the first in the country to incorporate sickle cell anaemia control program in the existing health services of the state government, thus transforming project in to programmatic mode. The current program is based on public private partnership. Sulzner Sickle Cell Anemia Foundation believes that Individuals suffering from Sickle cell disease have the right to quality care. Its mission is to emphasize on the importance of making healthy awareness to provide increased access to qualitative health care, education and poverty alleviation to the Sickle Cell Anaemia Disease community. Integration with general health services along with the active participation of different sectors, NGOs and the community will be the thrust areas under this program. All the tribal districts, having a network of health institutions will be covered under the program. SSCAF professionals serve on the Medical and Research Advisory Committee (MARAC). The members represent institutions from throughout the country and cover all of the disciplines related to providing physical and psychosocial healthcare and assistance for individuals with sickle cell Anaemia disease.(SCAD). Official website
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Southwest Louisiana Sickle Cell Anemia

Southwest Louisiana Sickle Cell Anemia, Inc. is a nonprofit organization in Lake Charles, Louisiana. The mission is to enhance the quality of life for persons with Sickle Cell Disease, their families, and the community through education, networking, guidance, and referral of needs to support services. Services include: -Sickle Cell Anemia (SS) -Combination Sickle Cell Disease -Anemia -Sickle Cell Trait -Hemoglobin C -Hemoglobin (HB S) Official website
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Cure Sickle Cell Foundation

Cure Sickle Cell Foundation, Inc. is a 501(c)(3) nonprofit corporation registered as a Mississippi Charity dedicated to fighting sickle cell disease and helping families who it affects. It's mission is to improve the lives of families who suffer from sickle cell disease (SCD) through education, family support and research. The ultimate goal is to support efforts aimed at providing a universal cure for SCD. While there is no cure, the painful symptoms of this disease can be prevented by regular blood transfusions. Because of the need for regular transfusions over a patient’s lifetime, it is critically important that blood transfused to Sickle Cell patients be as closely matched as possible. If the blood is not closely matched, the patient may build antibodies against the donated blood, and the transfusions will be ineffective in treating the symptoms of the disease. Like other genetic factors, blood is similar among people of the same ethnic group, that is why the closest match for a Sickle Cell patient will most likely come from an African American donor. We run blood drives to help people overcome these challenges. Official website
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North Alabama Sickle Cell Foundation (NASCF)

North Alabama Sickle Cell Foundation's (NASCF's) goal is to improve the quality of life for people who suffer from Sickle Cell Conditions through patient enrichment programs, educational programs, counseling services, and screening programs. Other services include health promotion seminars, financial emergency assistance, and socialization. In addition, a wellness clinic is set up at Huntsville's U.A.B. Medical Clinic that is designed to provide ongoing preventive medical care for Sickle Cell Patients (0-18 years of age). The Mission of the North Alabama Sickle Cell Foundation, Inc. is to provide comprehensive social services to improve the quality of life of individuals living with Sickle Cell. The vision of the North Alabama Sickle Cell Foundation, Inc. is to increase education, health awareness, life skills, promote self-sufficiency, and improve the quality of life of individuals living with Sickle Cell. Official website
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Hina Patel Foundation for Sickle Cell Disease

Hina Patel Foundation promotes positive outlook and lifestyle for greater well-being by equipping patients with lifetime coping by increasing the knowledge and understanding of Sickle Cell Disease as a health problem through professional standards of administration, health care, public relations and fundraising. It's mission is to increase public awareness about Sickle Cell Disease through education, and to provide support through medical research, accessible services, and intervention for suffering individuals, with an ultimate goal of enhancing the well-being of those affected by Sickle Cell Disease locally and globally. Official website
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South Central PA Sickle Cell Council

The South Central Pennsylvania Sickle Cell Council (SCPASCC) was incorporated in November of 1994 and is a 501(c)3) non profit organization that provides education and health services to persons with Sickle Cell Disease (SCD) and Sickle Cell Trait (SCT) and their families. What we do each day impacts the lives of people who live with this painful disease in the 26 PA Counties that we support. Various people contact the Sickle Cell Council (SCC) to ask for help for themselves, and/or, loved ones. After identifying people who are suffering silently, without the benefits of our services, we encourage them to start using our programs and services to make their lives easier. We offer Youth, Adult, Family and Caregiver Support Groups to help them develop tools to regain a sense of control over their lives. Official website
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