Recognized as a public utility since 1999, the Pierre Fabre Foundation works to give people in the South better access to medicines and quality care. Its four areas of intervention are the training of health professionals, the fight against sickle-cell anemia, access to quality care, and dermatology in tropical environments. In 2017, the Foundation conducted 23 programs in 15 countries, in Africa, Asia and Lebanon. The Foundation is focusing its efforts on neonatal screening for the disease, an uncommon practice in Africa, and facilitating access to proper care. Starting with the Research Centre to combat sickle cell disease (CRLD) founded in Bamako, it intends to broadly disseminate the necessary skills for this battle elsewhere on the continent and in the Caribbean region, and forge effective South-South collaborations. Official website

The Sickle Cell Disease Association of Florida, Inc is a 501(c) 3 nonprofit advocacy organization serving individuals and families impacted by sickle cell disease in the state of Florida since 1976. The mission of the Sickle Cell Disease Association of Florida is to provide statewide leadership in educational awareness about health, economical, psychosocial and social welfare impact of sickle cell disease and related disorders on individuals and their families in the state of Florida. It’s purpose is to stimulate community interest in the need for improved services and programs to enhance the quality of life for sickle cell individuals; provide educational programs to encourage awareness of the disease; develop and implement other related programs and services; support research efforts, and engage in state and national legislature and other methodologies to decrease and/or resolve the problems associated with sickle cell disease. Official website

Piedmont Health Services and Sickle Cell Agency (PHSSCA) has served North Carolina communities since 1970. Our mission is to provide outreach, education, screening and case management for people with high-risk health problems. Our vision is to be a leading community-based preventive health and outreach agency for all people. ​ PHSSCA provides comprehensive sickle cell services in the following seven North Carolina counties: Guilford, Forsyth, Alamance, Rockingham, Randolph, Caswell and Mecklenburg. ​ In addition to sickle cell services, we also provide many other vital services such as HIV/AIDS education and outreach, child development programs and free wellness clinics. Official website

The Fredericksburg Area Sickle Cell Association (FASCA) is a nonprofit, volunteer health-service organization. FASCA has operated as a completely volunteer, financially self-sustaining organization, providing effective support, encouragement, and education in the city of Fredericksburg and the surrounding counties of Stafford, Spotsylvania, King George, and Caroline. FASCA is governed by a knowledgeable board of directors, encompassing nurses, clergy, parents who have raised children with sickle cell disease, and other committed advocates. We were founded in 1972 by the Rev. Lawrence A. Davies, who envisioned a statewide network of sickle cell organizations, providing education and promoting awareness in order to improve health care services for sickle cell patients. Official website

Since April of 1992, the Sickle Cell Thalassemia Patients Network (SCTPN) has been providing education, advocacy, referral services, and support for individuals and families living with sickle cell disease, thalassemia (Cooley’s Anemia), and other inherited blood disorders. SCTPN, is a 501 (c)(3) tax-exempt organization, which provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia), and other inherited blood disorders. Public education programs and webinars are provided to help increase awareness of hemoglobin disorders. These programs also provide non-medical information that empowers individuals to take control of their health and thus enjoy a better quality of life. Advocacy is provided for families as they migrate the sometimes complicated healthcare system. Referrals for related services are also provided. Official website

The Sickle Cell Anemia Foundation of Oregon is a 501(c)(3) non-profit organization dedicated to educating vulnerable populations and to encourage testing for the presence of this painful and life-threatening, but treatable disease. The foundation helps patients with: Patient advocacy, Access to support groups, Parent education, Genetic counseling and referrals for free diagnostic testing, Ongoing education about SCD and about available treatments, Limited funds for home heating during winter months, and Moral support. Our immediate objective is to identify all the patients and carriers of sickle cell disease living in Alaska, Idaho, Oregon, and Washington state. We are dedicated to assessing the health care needs of these patients and helping them by facilitating regular access to appropriate health care providers and services. Our Pacific Northwest outreach program aims to provide individuals with the information they need to be tested for the presence of sickle cell disease. Diagnosed patients are encouraged to sign up with the national “Get Connected” Sickle Cell Anemia registry. Official website

Located in Augusta, Georgia, Augusta University is a public research university and medical center dedicated to training the next generation of innovators, leaders and health care providers. The Augusta University Sickle Cell Center, established in 1972, is a comprehensive internationally recognized center for sickle cell treatment and research. The center incorporates the work of Augusta University faculty from medicine, pediatrics, hematology/oncology, allied health, anesthesia and perioperative medicine, biostatistics and epidemiology, molecular biology, and other specialties. This multidisciplinary approach creates a dynamic synergy that places the center in the forefront of patient care, research, and education. Official website

The As One Foundation was established in 2007 as a non-profit 501(c)(3) organization to facilitate community programs both individually and in conjunction with similar organizations. It's vision is to support and enhance youth development by providing youth-centered activities and opportunities to develop character, values, sportsmanship, responsibility and positive relationships through a foundation that is supported and valued both nationally and internationally. Official website

Sickle Cell Association of Richmond – OSCAR is a non-profit 501 (c) (3) community-based program providing services free of charge to Sickle Cell patients and their families. Its aim is to encourage patients to share experiences about what works for each individual in terms of diet, medication, pain management, pain partners, stress management and the psycho-social aspects of having Sickle Cell Diseases to gain feelings of empowerment and to dispel the Sickle Cell Myths. The organization provides services to residents in the counties of Amelia, Charles City, Chesterfield, Hanover, Henrico and the cities of Colonial Heights, Hopewell, Petersburg and Richmond. The goal is to encourage patients to share experiences about what works for each individual in terms of diet, medication, pain management, pain partners, stress management and the psycho-social aspects of having Sickle Cell Diseases to gain feelings of empowerment and to dispel the Sickle Cell Myths. Official website

The Lifespan Comprehensive Sickle Cell Center has two components: clinical care and research. Patients of all ages with sickle cell disease receive care in the Rutledge Tower second floor clinic. The clinic is staffed by a multidisciplinary team of pediatric hematologists, hematology nurse specialists and a clinical coordinator. Patient and family education is provided at the time of diagnosis and is incorporated into all clinic visits. Our clinic provides acute care for patients with pain, fever and other complications of sickle cell disease as well as comprehensive, routine care and disease-specific management. Official website