Blessed Miracles Foundation

Blessed Miracles Foundation, Inc. is a non-profit, faith-based ministry organization dedicated to advocacy, support, and empowerment of people dealing with chronic illnesses such as Sickle Cell Disease, Fibromyalgia, mental illnesses, and others. It's goal is to help individuals find wholeness that equals laughter, love, and living long lives. Sickle Cell Anemia, Lupus, Fibromyalgia...are all forms of invisible illnesses that people suffer chronically. We are here to help those with expenses that some insurance may not cover, including utility bills and to provide a support base to let people know that they are not alone. Official website
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The ELM Project

The mission of The ELM Project is to enhance the lives of youth living with the challenges of HIV/AIDS and sickle cell disease by providing an enriching summer camp experience, year-round skill building and a supported transition to adulthood. Through the addition of a teen leadership program and most recently, a mentor program for young adults, we have grown into an organization that supports youth from childhood through young adulthood (ages 8-21). We also serve even more children today after expanding to include participants affected by sickle cell disease. To better represent the various opportunities available, we adopted the name The ELM Project in 2015. ELM stands for Encourage, Lead, Mentor and represents the tenets we strive for in our programming. Official website
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Shak's Hope

Shak’s Hope is a 501 (c) 3 non-profit foundation dedicated to serve the community of people living with Sickle Cell Anemia. They pledge to dedicate time to making those stricken with Sickle Cell live a better life, one person at a time. Shak's Hope's goal of raising awareness through education is the primary focus. The first step in understanding the disease is knowing your status. For people of child bearing age, this is an important thing to know before starting a family. We are an organization whose mission is to raise awareness while providing services that improve the quality of life for those afflicted with Sickle Cell Anemia in South Florida and Jamaica. A better way to live with Sickle Cell is our mantra. Our company was formed by way of necessity for change. Too often, we find, non-profits direct funds mainly to research and not enough towards quality of life for those living with life-threatening illness. Shak’s Hope comes from the heart of someone living with and experiencing the challenges of sickle cell patients. Official website
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Sickle Cell Foundation of Minnesota

Sickle Cell Foundation of Minnesota (SCFMN) is the only active sickle cell community-based organization in the state of Minnesota. We are also a 501(c)(3), not-for-profit organization. It aims at improving the lives of individuals and communities affected by sickle cell disease through education, advocacy, access to resources, and community empowerment. SCFMN is passionate about making a change and leaving our footprint wherever we go. We recognize that there are unmet needs in Minnesota's sickle cell community and we want to be a source of strength, hope, and encouragement to those in need of our services. We also recognize the impact of providing reliable education and awareness around sickle cell disease and sickle cell trait. We regularly partner with other community organizations, hospitals, clinics, and businesses so that we can increase our reach and impact more communities. Official website
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CSC Support Group for Kids

The Cedric Sickle Cell (CSC) Support Group 4 Kids is a nonprofit organization for kids with sickle cell anemia. It strives to increase the awareness of the Sickle Cell Disease itself but also address the many needs of patients and their immediate family members. The CSC Support Group 4 Kids is dedicated to bringing awareness to the community and on-going support to kids with Sickle Cell Disease. We here at CSC Support Group 4 Kids, understand that your time is valuable. We appreciate your financial seed as well as your time seed. CSC Support Group 4 Kids came into existence as a response to real life experiences. Vanessa has dedicated her life to raising awareness in the community and trying to find help for families and children facing Sickle Cell Disease. Her youngest son, Cedric, was diagnosed with Sickle Cell Disease at the age of 18 months. His bloodwork at birth seemed normal but by his first year he began to have fevers, seizures and swelling of the hands and feet. He was sent to a hematologist who retested him and found that he had Sickle Cell Disease. Over the next few years her family and she faced multiple doctor visits, hospital stays and surgeries. When going through this difficult time she realized that her primary support group was her family. This thought got her thinking that the community could benefit from having a Sickle Cell Disease support group, especially for the children. Official website
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WHATZ DA COUNT

WDC on SCT has dedicated his Organization to educate the human race on Sickle Cell Trait (SCT is HbAS) also known as The Silent Killer, by low cost to free mobile screenings, distributing information and presentations, written and visual about SCT. The Organization will travel the world to caution Children, Parents, Teachers, Coaches and all Branches of Service; the critical need of testing for the Sickle Cell Trait that can cause life-threatening complications of exercise, exertional heat illness (exertional rhabdomyolysis, heat stroke, or renal failure) or idiopathic sudden death. WDC sparks conversation about this 107 year old condition and disease within the communities of people that are living and thriving with these conditions. Opening the door to conversation provides an outlet for people that may have otherwise remained silent to speak out through the on-line radio broadcast and several social media outlets such as Facebook and Twitter. Official website
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Nirvana Initiative

Nirvana Initiative is an organization set up for individuals affected by Sickle cell Disease. It is dedicated to spreading awareness and educating the general public about the disorder and at the same time change people’s orientation about those affected and the disease itself. It's ultimate goal is the eradicate stigmatization and ignorance associated with Sickle cell disease. We understand that there is a need for a safe haven and direct support for sickle cell individuals and their families, as they get lots of negative vibes, criticisms, harsh treatments, pity, etc. that is why we are here for them anytime. We are here to laugh with you, pray with you, hug you, support, empower and inspire you. We are a community and a family, we understand and we care. Official website
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The Sickle Cell Foundation, Inc. - Central Alabama Chapter

The Sickle Cell Foundation, Inc. - Central Alabama Chapter aims to enhance the quality of life of individuals and families affected by sickle cell disease through education, advocacy, and support.​ The Sickle Cell Foundation wants to make sure you get the help that you need when it is needed. They want you to better understand the disease so that you can make informed decisions about your life and your care. They also want you to take all opportunities to learn more about health strategies, pain management strategies and medications that can help treat your disease. As you know, sickle cell disease affects every aspect of a person's life. The Sickle Cell Foundation is available to assist affected individuals and families with these challenges. They provide referrals to programs and services available in our community. At the Sickle Cell Foundation, they work to connect you with the network and to connect you to others who have experienced the sickle cell disease journey. Official website
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Next Step

Next Step's mission is to shatter limitations and elevate aspirations of teens and young adults living with chronic life-threatening illnesses during their transition to adulthood. Next Step provides free year-round education and support programs for young people, ages 16-29, who are coping with cancer, HIV and rare genetic disorders. ​Next Step offers a program that includes afterschool workshops that helps teens overcome these issues through intensive one on one academic tutoring, mentoring, peer support, disease management education and medical self-advocacy training programs. Teens are paired with college students who provide individualized support and guidance through weekly group sessions and hospital visits. Most Next Step youth living with sickle cell disease participate for the duration of their high school career, building meaningful and long-lasting relationships with their mentors. The goal is to help teens manage their condition effectively so that they can successfully finish high school and realize their full potential. Official website
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Sickle Cell Foundation, Inc. - Tallahassee

The Sickle Cell Foundation, Inc. was organized on February 21, 1980 at the office of the Tallahassee Urban League. Upon installation of the newly organized foundation, an official charter was issued and later received nonprofit organization 501(c)(3) exempt status. There are sixteen (16) chapters in the State of Florida. The Sickle Cell Foundation, Inc. is the only local agency serving District II providing services to the following counties: Leon, Jefferson, Wakulla, Madison, Taylor, Gadsden, and Jackson counties. The mission of Sickle Cell Foundation, Inc. - Tallahassee is to enable individuals with sickle cell anemia to live lives to the extent possible unhampered and uncompromised by their sickle cell conditions and to increase the knowledge and understanding of sickle cell disease as a health problem through professional standards of administration, health care, public relations and fundraising. Official website
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