The mission of the My Three Sicklers (MTS) Sickle Cell Foundation is to increase the public’s awareness of sickle cell anemia by supporting awareness, education and research pertaining to sickle cell anemia as well as providing support to families affected by this life threatening disease. MTS Sicke Cell Foundation, Inc. is recognized as tax-exempt under section 501(c)(3) of the Internal Revenue Code. 100% of your donation is tax-deductible. Our Federal Tax ID number or Employer Identification Number (EIN) is 47-4594496. Donations made outside the United States may not be tax deductible. Objectives: -Increasing public awareness of sickle cell disease and providing support to families affected by sickle cell disease -Supporting educational and informational activities to increase public awareness of issues affecting the sickle cell community -Providing information to the public about the need for support, awareness, and advocacy for sickle cell disease -Sponsoring meetings, events, and workshops about how to live well with sickle cell disease -Educating the public about the funding needs of organizations that work to bring awareness to sickle cell disease and support families affected by SCD Official website

The James R. Clark Memorial Sickle Cell Foundation is a non-profit United Way agency serving sickle cell clients and their families in 15 Midland and Upper South Carolina counties. Our vision is to be the face and voice of sickle cell in the communities we serve through effective advocacy and education. Our mission is to optimize the social, psychological, and physiological well-being of individuals with sickle cell disease and to decrease the incidence of sickle cell disease through genetic screening, counseling, and education. Our Services: -Newborn Screening: By State Law, all babies are tested at birth for a variety of genetic traits and disorders, including sickle cell disease, sickle cell trait and their variants. We keep your test results as confidential. -Genetic Screening and Counseling: The blood test and follow-up genetic counseling are provided free of charge by the Foundation, and the results are confidential. -Nurse case management -Community Education -Adult and parent support group -Children support group -Hospital visitation -Emergency client assistance -Financial support to research Official website

Axis Advocacy is a grass roots organization focused on education and advocacy for those living with sickle cell disease. Axis Advocacy is a non-profit organization connecting those with Sickle Cell Disease with researchers thereby creating a cure or developing new treatments. Axis Advocacy is a 501 (c) (3) non profit organization dedeicated to improving the lives of people living with Sickle Cell Disease through policy, research and services. Official website

The International Association of Sickle Cell Nurses and Professional Associates (IASCNAPA) is the only association of nurses, physician assistants, social workers, and other health care professionals caring for individuals with sickle cell disease. IASCNAPA recognizes its responsibility to maintain high standards in the provision of quality and accessible health care services for individuals with sickle cell disease. IASCNAPA is committed to strengthening the relationship between nurses and physician assistants who care for patients with sickle cell disease. Official website

Global Genes® is a 501(c)(3) non-profit corporation. Our Leadership Team, Board of Directors and Advisory Teams are committed to programs centered on our core mission of working to eliminate the challenges of rare disease. Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®. What began as a grassroots movement in 2009, with just a few rare disease parent advocates and foundations, has since grown to over 500 global organizations. Many of our leaders support children, family or friends with rare diseases. They understand the fight on a deep personal level and keep in mind the needs of our community at all times. Global Genes® and our leaders are committed to ensuring that our programs support our worldwide mission of awareness and outreach, education, innovation and technology and research, and collaborative partnerships. You can get involved with us through educational programs such as rare webinars, rare toolkits, annual events, patient advocacy summits, or through collaborative partnership programs. Official website

The Sicklekan community aims to spread awareness through various avenues, firstly by spreading awareness not from the point of view of medical professionals, but through first-hand experience of patients. They believe that by making people aware and giving them the correct tools to aid themselves or others in need of assistance, this would mean a decrease in the amount of Sickle cell patients feeling neglected and improperly cared for. With the right funding and support the Sicklekan can reach and provide information and support to members of the community, schools, business and other organisations and address the grey areas surrounding Sickle cell implementing measures to rectify this. Official website

The Sickle Cell Association of Kentuckiana, Inc. (SCAK) is a tax-exempt not-for-profit organization that provides education, support, and advocacy for individuals with sickle cell disease and their families. SCAK is dedicated to increasing awareness of this disease and supporting endeavors that assure prompt and appropriate medical care. SCAK, founded in October 2000, has been an advocate and resource for patients and families throughout Kentucky and Southern Indiana. Thus far, this has been achieved through support groups, community outreach opportunities, and efforts to establish a comprehensive Sickle Cell Center of Excellence. SCAK currently has approximately 50 members and is continuing to grow. One major goal is to establish a comprehensive Sickle Cell Center of Excellence and to build the infrastructure to support that program. The center of excellence will provide comprehensive psychological, social, and medical care to patients and families affected by the disease. The existence of SCAK in establishing a network of communication throughout Kentuckiana to provide information to individuals and families living with sickle cell disease is a critical supporting component of this initiative. Official website

Kier’s Hope Foundation (KHF) is a newly established non profit organization for the benefit of persons and families affected by Sickle Cell Disease. The Staff is comprised of volunteers with expertise in program development, event planning and fundraising, marketing and communications, and management. The Board of Directors includes leaders in the business community who generously give of their time and resources in support of KHF’s critical mission. These dedicated people may come from all walks for life, but they all agree on one thing: they’ll do whatever it takes to change the shape of Sickle Cell Disease. Kier’s Hope Foundation envisions a world where Sickle Cell Disease no longer exists, a lasting health change in the United states in how they recognize sickle cell disease as a national priority, providing communities with the knowledge, skills and means to maintain their good health and break the cycle silence as it relates to care and funding of sickle Cell families in the United States. Our mission is to increase the community awareness and serve as an advocate for families affected by Sickle Cell Disease through programs, education, support for finding a cure, with the ultimate goal to help improve the quality life of families that struggle with Sickle Cell Disease. Official website

Cianna’s Smile is a registered charity based in Reading, Berkshire. The charity was started by Cianna’s mum Hayley who felt that there was lack of support for those affected by Sickle Cell. Cianna’s Smile offers support to families affected by Sickle cell in the Thames Valley area in the UK. Families can join the Cianna’s Smile family fun club and enjoy days out with other families who are experiencing the same challenges and experiences they are. Cianna’s Smile aims to offer support to families in the Thames Valley area who are affected by Sickle Cell Anaemia. We often organise awareness events to help people have a better understanding of what Sickle Cell is and how we can help those affected by it. Once a year we have a charity ball to help raise money to fund our support groups. Official website

LIVING with Sickle Cell RVA is a fully functional 501 (c) 3 non-profit organization located in Richmond, Virginia. The organization was founded in 2015 by a mother of five who has two children LIVING with the disease. ​ The organization's mission is to help kids and families affected by Sickle Cell Disease to LIVE through Education, Advocacy & Empowerment. Education about Sickle Cell Disease as well as Sickle Cell Trait is provided to patients, their families, caregivers, educators, and anyone else that would like to learn more. Official website