The Sickle Cell Transplant Advocacy & Research Alliance (STAR) is a non-profit organization created by a group of pediatric hematology and stem cell transplant doctors. STAR seeks to enhance the lives of children suffering from sickle cell disease through blood and marrow transplantation. STAR conducts research to create better transplant approaches-ones that safely achieve cure for the greatest number and provides both critical funding as well as an organized collaborative network for this important research. Your support of STAR goes directly toward medical research and testing new transplant approaches to make a cure safer and more available. With your help, doctors will improve stem cell transplant therapy for sickle cell disease. That means the cure will be available for more children and will have fewer side effects. Across North America, advances are being made in the use of blood and marrow transplants. There is a growing population of individuals who have been transplanted for sickle cell disease. Some who were children when they had this life saving therapy are now adults. STAR centers will analyze health information on approximately 200 persons who underwent transplant for sickle cell disease. For the first time, we will be able to study health outcomes and how people fared after five, ten, even fifteen years. Official website

The Valerie Fund has pediatric sickle cell programs at each of our centers. Our program at Newark Beth Israel Medical Center is the largest in the state of New Jersey with nearly 500 infants, children and young adults, with another large program at our Voorhees, NJ Center, part of the Children’s Hospital of Philadelphia system. You can help us expand services for our Sickle Cell Program to ensure that patients and their families receive sufficient one-on-one care and education with your donation. We hope to raise funds that will allow us to provide dedicated nursing and social work services at our largest program in Newark—this is particularly important for our newly diagnosed families and also for adolescents and young adults who are heading toward independence and will need to manage their own health and health care. Official website

Sickle Cell Foundation of Palm Beach County & Treasure Coast, Inc. is a private, not-for-profit organization that administers public funds, private grants and donations for education and services to persons with Sickle Cell Disease/Trait and their families in Indian River, Martin, Okeechobee, Palm Beach and St. Lucie Counties. In addition to outreach, advocacy and screening, the following services are available to persons with Sickle Cell Disease/Trait: -basic life skills counseling -comprehensive case management -information and education to parents of infants who test positive for Sickle Cell Trait -family support groups Since our founding in 1979, our organization has helped thousands of people understand how to live with the disease/trait, which affects 1 in 12 African-Americans but is not limited to just that ethnic group. Official website

The Sickle Cell Disease Association of America (SCDAA) Miami-Dade County Chapter, Inc. was founded in 1978 as the Dade County Sickle Cell Foundation, Inc. We changed our name in 1995 to comply with other local affiliates of the Sickle Cell Disease Association of America, Inc. (SCDAA) Miami-Dade Chapter. Its membership is comprised of lay persons as well as medical and allied health professionals. It is the successor of the Dade County Sickle Cell Advisory Council which was established as the “community arm” of the University of Miami Comprehensive Sickle Cell Center in 1973. The SCDAA Miami-Dade County Chapter is affiliated with the SCDAA, the National Voluntary Health Agency and the affiliated Combined Federal Campaign. It is a charitable non-profit organization that is exempt from taxes under section 501 (c)(3) of the Internal Revenue Code. SCDAA Miami-Dade County Chapter, Inc. works closely with the University of Miami Sickle Cell Center in achieving its goals. It is, however, an independent and autonomous organization and reaches out to help all individuals and families affected by sickle cell disease in the Greater Miami-Dade County Community. It is funded by contributions from fraternal, civic and social organizations, individual donors and corporations. Official website

The Bridges Pointe Sickle Cell Foundation serves as a Support Service Agency. These services include but are not limited to: Medical Bill Assistance, Transportation, Career Counseling/Planning, Medical Co-Pay, Funeral/Burial Assistance, Housing, Clothing, Food, SSI/Disability Prep & Insurance Application assistance. Mission: To promote the development of supportive services for young adults with Sickle Cell Disease and to empower them for independent living and to enhance their quality of life. Official website

Established in 1993, Nevada Childhood Cancer Foundation (NCCF) is a local non-profit organization providing over 45 programs and services at no cost to pediatric and adult patients and their families living in Southern Nevada. Our goal is to improve the quality of life for critically ill children, their families, and adults touched by cancer in our community. When a child is diagnosed with cancer or other life-threatening illness, they look to NCCF for support, hope, and courage. Within 24 hours of receiving a pediatric referral, the NCCF service professionals work in tandem to identify the financial, educational, and psychological needs for each family. Official website

The vision of Sickle Cell Disease Association of America - Michigan Chapter, Inc. began in August of 1971 at Kirwood Hospital when Dr. Charles F. Whitten founded the Sickle Cell Detection and Information Program. They completed purchase of our office building in 1990. The building contains 14 offices, a laboratory, and separate rooms for meetings and education. There is also ample outside space for client activities. Nationally, they are one of the only community based agencies responsible for a state wide sickle cell program. Their Mission is: -To maximize the life potential of individuals living with sickle cell disease -To enable individuals with sickle cell trait to make informed decisions with respect to family planning -To provide education and testing for the general public Official website

The Sickle Cell Disease Association of Tri-County serves as a Support Service Agency. These services include but are not limited to: Medical Bill Assistance, Transportation, Career Counseling/Planning, Medical Co-Pay, Funeral/Burial Assistance, Housing, Clothing, Food, SSI/Disability Prep & Insurance Application assistance. The mission of sickle cell disease association of Orange, Seminole, and Osceola Counties, Inc. is to educate the public regarding sickle cell disease and sickle cell trait. In addition, the organization is committed to providing economic, psychological and emotional support to individuals and families affected by the dreaded disease. Official website

Inspiring More Minds, Inc. is dedicated to assisting, encouraging, and inspiring individuals afflicted with Sickle Cell Disease. Inspiring More Minds, Inc. has the following services under development: -Scholarships -Grants (for entrepreneurial endeavors) -Mini Grants -Transportation Assistance -Emergency Funds -Sickle Cell Disease Awareness Programs and Workshops -Online Community Support Network and System -Hospital Advocacy Official website

Hope for SCD strives to bridge the gap between medical providers, stakeholders and patients through clear and concise educational materials. They work with both Adult Learners and traditional age learners through online, print and in person educational venues. Their goal is to help educate everyone about Sickle Cell Disease, not just those affected by it. The more people they educate, the more exposure Sickle Cell Disease will receive. Their hope is that this will equate into more funding for research, education and outreach for the organizations and hospitals that are already trying to break the Sickle Cycle. Official website